C Difficile (Clostridium Difficile) – What is it?


What is C Difficile? It sickens 500,000 people per year in the USA alone. It contributes to the death of 30,000 people in the USA every year.

C. difficile is a bacteria found in the gut of many. This potentially dangerous bacteria is prevented from harming us by the action of other bacteria. When these ‘good’ bacteria are killed by antibiotics taken for other medical conditions, C Diff can then create severe illness in the intestine.

We monitor the latest c.diff trends every day. We want to help you discover answers to the key questions about c.difficile.

What is c difficile (c diff)?

Clostridium Difficile is a bacteria found in soil, animals and humans. It has the ability to form spores that are hard to destroy. Read More

What are the symptoms of a c diff infection?

These include a fever, stomach cramps and often diahrrea. Learn the difference between mild and severe c.diff. Read More

How do I know I have c difficile?

A guide to c.difficile tests and why knowing what strain of c diff infection you have is important. Read More

What is the c diff treatment?

It may be simple as withdrawing antibiotics. It could be special drugs. in hard to treat cases it may need a fecal transplant Read More

Is there a C.Diff diet?

Simple suggestions to help you recover from an infection Read More

The C Diff Fecal Transplant Therapy Explained

It sounds gross but it cures 90% of the people who have chronic c difficile Read More

The C Diff Smell – 6 Key Facts For You

C.Difficile sufferers and their nurses and carers talk of a very distinctive smell Read More

C Diff Colitis – What is it?

Bad cases of c diff infection can damage the lining of the intestine.Read More

C Diff Contagious – How do you catch it

Some people catch C Diff in hospital but there are many other possible ways it is transmitted Read More

221 thoughts on “C Difficile (Clostridium Difficile) – What is it?

  1. Kelley

    My Dad is 87 and has been ill since end of June. UTI, MRSA in bloodstream, and found out today has 3rd case of cliff. They have used vancomycin with flagyl for first bout and added florastor to second bout. Usually five days after antibiotics end, it’s back. He spent 3 days in the hospital when they first found it. Rest of time he’s been in rehab/nursing home facility to continue treatment. Please tell me what else might be done to help my Dad beat this and get stronger. My Dad was a very strong man but this has taken a toll on him and each time he is weaker

    Reply
    1. Infection Watch

      Dear Kelley

      Dificid is very effective at stopping repeat C Diff. It is new and may be expensive. Fecal transplants are also very effective for 90% of people

      Hope this helps

      Dave

      Reply
  2. mary

    You can definitely have false negatives. My recommendation would be to go to a “hospital” lab and make sure you go to the same lab every time. Agree with comments on going to infectious disease doctor. My ordeal was 2 1/2 years. After my fecal transplant, I do have symptoms that sometimes are similar but have been told it is colitis. C Diff can really screw up your colon. Take your temperature twice a day. Record how many times you go to the bathroom and record the fatigue and how bad it is on a scale of 1-10.

    Reply
  3. Carrie Smith

    How often might a false negative show up if in fact a person has c-diff. I had been tested several times during my 3 year ordeal and was told the test was negative, then after finally going to an infectious disease doctor the test came back positive. Have gone through all the antibiotics which did not help, then had 3 fecal transplants. Still show symptoms on occasion. Is it possible to still have c-diff even with a negative stool test? Are different tests more sensitive then others? I just want to be well again some day. Any suggestions?

    Reply
  4. mary

    After 6 rounds of antibiotics, I had the fecal transplant. Worked the first time! I do have colitis as a result of my C:Diff but easier to manage that than c:diff. I would highly recommend the fecal transplant.

    Reply
  5. Carrie Smith

    I’ve had the drug dificid several times and it did not work for me. I’ve also had 3 fecal transplants, the first working very well, then I became septic and had to go on antibiotics which brought back the c-diff. The second transplant did not work at all, and the third one seem to somewhat work, but have not been fully well (like the first one) since I’ve had it. That is why I was wondering if my symptoms are just lingering effects and I’ll get better some day, or if I might still have c-diff although I’ve tested negative. Any ideas?

    Reply
    1. Infection Watch

      There may be other intestinal issues. It is hard that you are one of the 10% for whom FMT doesn’t work fully.

      Reply
  6. Carrie Smith

    How long does it take to completely heal after having multiple c-diff infections. Can you explain some of the lingering affects.

    Reply
    1. Infection Watch

      Bit hard to generalise from my reading of the literature. Sometimes the gut rebalances but can be upset again by a fresh round of antibiotics. The recent drug Dificid is thought be better at eliminating c difficile. Fecal transplants are the ultimate tool for rebalancing the gut.

      Dave Roberts
      cdifficile.org

      Reply
  7. randy gollay

    Whatever works for you is the key. Everyone is different. Education and persistence, along with hope go along way to recovery. The mental and spiritual go side by side with the medical

    Reply
  8. mary

    Randy: My heart goes out to you and your wife for all the trials you are going through. Please make sure that you test her again in 2-3 weeks. Go to the same lab as the original. I am hoping it comes out negative again. The antibiotics did nothing for me. I was on 5 rounds of vanco at the cost of $1500 each round and on flagyl. The only thing that resolved my issue was the fecal transplant. My prayers for you all!!!

    Reply
  9. Randy Gollay

    My wife has had MS for 28 years (has only use of one hand) Had stage four bed sore surgery/flap. Hospitalized 14 days and the 14 days at top Rehab in world (CHi) Developed c diff. Flagyl in hospital and vancomyecin prescription after rehab. Cost is prohibitive (>$1750)
    Here’s what BRIDGET followed:
    oral vancomyecin from hospital pharmacy ($70)
    NOTE: most doctors unaware of this
    Cooked barley in slow pressure cooker, added lime and honey to the excess water (drank), bought probiotics at GNC 200 billion cultures ($72) In two weeks- stololl sample now negative. If you follow these three steps plus add PRAYERS!- you will defeat c-difff!!

    Reply
  10. C Diff Foundation

    Dear Dave,
    Our sincere gratitude for sharing the “Raising C Diff Awareness” educational events being hosted in September and November. We appreciate your participation and we hope to meet you in November in Chicago. Best to you and yours,
    C Diff Foundation

    Reply
  11. Kiyo Goto

    As I collect information about clostridium difficile colitis , it makes me so angry that the hospital where my wife (Kayoko) had entered for a fractured FEMUR bone could not diagnose the problem as soon as she developed diarrhea. I informed the medical staff that she has never had diarrhea problems in her life. That she was more likely to have constipation problems.. She passed away without ever being able to come home!! Two days after her operation, she was hallucinating like she was on some kind of drugs!! I informed the staff that something is wrong!! I sure wish that I had this knowledge on clostridium difficile colitus at that time..

    Reply
    1. mary rabquer

      Kiyo–I am so very sorry for the loss of your wife. For the hospital to not know immediately what was causing the diarrhea is inexcusable. I cannot believe this happened. You go into a hospital thinking they are fixing what you went in there for and end up walking out with a whole new set of problems. Or, in your case, be one of the tragedies of this horrible condition. 16,000 people a year die from C-Diff related issues. My heart breaks that your loved one was one of them.

      Reply
  12. mary

    Dee:
    I am SO GLAD you are having the transplant on Friday!! It is definitely a piece of cake…or piece of poop (LOL). You will feel nothing at all. They gave me some “happy juice” and I was out. Exactly the same as a colonoscopy. I did have to clean myself out (I was convinced there was nothing left inside me but there was a little). That was the worst part. I was home within 4 hours. I was very reluctant to go to the bathroom & just wanted to lay in bed and let the good bacteria multiply. I had the procedure on Friday & had a little diarrhea on Sunday from the after effects of cleaning myself out. On Wednesday, I had a “normal” bowel movement. One. There was no c:diff smell, no odd color. It was normal. I do have some gastro problems as a result of my c:diff & am on a reflux medication. But, the doctor said my c:diff was at the highest farthest part of my colon & not surprised I have some reflux. I will take that any day over a colostomy. Please let me know if you have any specific questions. You will do fine, Dee. Please email me and let me know how you are. mary.b.rabquer@owenscorning.com. Good luck & God Bless. I pray all goes well for you.

    Reply
  13. Dee

    Mary,

    Would you be willing answer some questions about the FMT procedure as I am going in on Friday to have one. I emailed you back a couple of months ago and you gave me some great advice.

    Thanks

    Dee

    Reply
  14. dusty

    I heard Garlic(fresh and raw, chewed) and oregano oil is effective against c-diff 1 capsule of the oil and no more than 3 cloves a day along with Probiotics is effective but I am no doctor and do not take my advice for one. the new drug which is very expensive cured me im c-diff free for two years now. I have taken every probiotic under the moon and I will tell you the best one I have taken is PB8. I had c-diff for 9 months and if a doctor tells you to take that cheap poison drug metronidazole find another doctor that stuff is bad. another drug I took vancomycin left my ears ringing for 6+ months and gave me recurring bouts of c-diff. Finally my c-diff was cured permanently with Dificid (fidaxomicin) with no side effects. after dealing with that disease for so long I feel compelled to help others battling it. Good luck

    Reply
    1. Lisa Hurka Covington

      Hello, I am so happy that the dificid worked for you and you are better today, but it did not work for me. Everyone is different. None of the three durgs worked for me after fighting c diff for 14 months. After taking dificid, I became suicidal and having people who had died coming to me in dreams every night until I got off of the drug. I am the spokesperson for suicide prevention in my state and known nationally for 23 years, and immediately phoned the company who sold dificid and told them they were to start a file in my name and keep records of my symptoms. I also wanted the drug company to print dificid may cause suicide on their labeling. The flagyl is another horrible drug, it made my feet worse with numbness in my feet which is still going on today, which is a side effect of the drug. All the drugs we take for this wicked illness have some side effects if not at the time of taking them, it could be later on. I have many illnesses since I have had the c diff. I also was told about oregano oil, which is powerful and garlic. Garlic can be taken everyday, but as far as the oregano oil, that is powerful and like an antibiotic and not sure when that shoud be taken? I tried it when had c diff and it did nothing for me, but I was to far gone in the months of hoping it was going away with the drugs. I did have the fecal transplant which I would recommend to anyone. God forbid I ever get c diff again, I will not dab in the drugs.

      Reply
    2. mary

      Allison, Dusty & everyone else. Please go on line and look at the article The Toledo Blade did on me a few weeks ago. The article is very poorly written (really bad reporter) but it shows what I went through and what you are all going through. The fecal transplant works! I took probiotics & antibiotics until it bankrupted me. My last chance was a colostomy & then my son & his mentor did research on a fecal transplant. This saved my life! My son has his PHD in immunology & without his research—and his poop–I don’t know if I would be alive today. Within 4 days, the diarrhea, gas, bloating, stomach pain & fever were gone (after 18 months). I have talked to dozens of people as a result of my postings here and the article in the Toledo Blade. I even had people take the article to the doctors with them. I wish I would have done it sooner. I only know of 1 person who was able to get rid of it using one dosage of antibiotics and probiotics. Reach out to me if you have any questions. mary.b.rabquer@owenscorning.com

      Reply
      1. Lisa Hurka Covington

        Mary,
        Your article was awesome, you are a gift to so many people.

        Your photo of both you and your dear son was beautiful.

        God bless you…..

        Reply
  15. Shari

    My elderly father (albeit not in great health) let this go for approx a week and was sent to the hospital. He became septic, they had to remove his colon and he died 3 days later of a heart attack. Too much for his poor body. Go see an infectious disease doc pronto. The test is easy-stool sample will diagnose….

    Reply
  16. ALISON RUSSELL

    hi everyone, i was reading about IBS on another site, I have been diagnosed with this for years, there was a person that posted that she had really smelly poops, a lot of wind and very bad cramping, an uncontrollable urge to run to the loo. a person answered her and said it sounds very much like she has got c-diff infection, I have been reading the posts on this site and I am sure I have the same thing, when I was originally diagnosed with IBS, I believed this is what I had, but trying to tell My doctor that my symptoms are much worse is impossible, he wont listen to me, what I have learned from this site is that antibiotics are a major cause, I cannot believe my Dr wont believe me, over the past few years I have been on antibiotics so many times. I too eurythamycin for five years due to a skin infection that wont go away, I have recently been diagnosed with Lupus, I have had all the tests to rule out allergies like lactose intolerance and celiac disease, which have come back negative. I am sooo fed up. I darn t leave the house for fear I will have an accident, it is so embarrassing when I am doubled up with pain and I cant Hide it. I just make my bathroom look pretty has I spend the most of my day in it. I have scented candles in it and everything. I want a cushioned toilet seat. the most embarrassing thing is if we have visitors and they want to use the bathroom after me, air fresheners, bleach, deodorant, perfume etc wont disguise the smell. can anyone tell me if the symptoms of c-diff cause severe heartburn and extremely bad wind, PLEASE HELP!!!! I cannot stand the thought of having to spend the rest of my life being ruled by my toilet habits. I haven’t been on holiday for years, I cannot see the point of spending all that money just to have to be near a toilet where I could quite possibly catch more bugs.

    Reply
    1. garrettmarsha

      You can die from this. Get yourself in with a infectious disease specialist pronto. You may be able to be helped quickly and effectively from a fecal transplant. Super easy and simple procedure.Get either an gastroenterologist or infectious disease doctor when you finish reading this! Sick with this for five months, in an out of hospital, finally my family doc referred me on to a gastroenterologist! He sent me to a infectious disease guy and since I knew the gastro doctor he preformed my fecal transplant. Woke up from the colonoscopy and was all better. No symptoms from that point on. You could be infecting your family! Scarey, I know. Start cleaning most objects with bleach.I used to have your same symptoms.

      My mom got c diff in a nursing home and eveeryone was ignoring it. I walked in and out of the room, went to the front desk and said she has c diff. Since I had it I knew the “c diff smell” well.They got her family doctor to order a test and it came back negative. I said that their findings were impossible and so they did the test again. Sure enough a raging case of
      c diff. Unfortunately, my mom was 90 and her tiny little body could not take this disease any longer–she died, They were trying to clear her up with flagel. Did not work for her or for me when I had it.. Vancomyacin did not work either. Fecal transplant does work I have been reading that they have fecal transplant pills now, but I would prefer colonoscopy transplant because it was an immediate solution.

      Reply
    2. mary

      Alison–please change doctors. he/she does not have your best interest at heart. If you stay, please insist on a stool sample test. tell him to “humor you” and it is not out of his pocket..you are paying for it! oh, that makes me so mad. go to a GOOD LAB—one at a hospital and if more tests are needed, go to the same lab. Please take care of yourself and take control of your body. Go to a new doctor if needed. Your symptoms sound so similar. this is nothing to fool with. please let me know how you are doing

      Reply
      1. dee

        How do you find a good lab? My doctors office lab work came negative. Hospital lab work came back positive. I now have no faith in doctors office lab work. How can I get hospital to do it without actually being in the hospital and I assume thats gonna raise the cost. Which is a factor as I have no insurance, somehow I figure something out.

        Reply
        1. mary

          dee…first on the lab. you said the hospital lab work was positive. call the hospital & ask if they have a lab for you to have bloodwork, etc. if they do, take your stool sample tests to them. just have the doctor write you a script instead of telling you to do it at his lab. remember, he is YOUR doctor and you have control of the appointment. i have faith in the bloodwork at doctors offices or labs there…but with this, it is a different story,…one I learned the hard way because of the false results that were really negative. Secondly, i would ask the doctor to refer you to infectious disease doctor FIRST….the ID doc will then order a colonoscopy or other tests thru a GI doctor. Again, you are in control. I highly recommend keeping a journal and write down symptoms EACH AND EVERY DAY. Then when you go to the doctor(s), take the journal with you and show the. Then, write down what he says. believe me, it will help you and you will feel more in control. list all your medications in there and what you have been on to treat this in your journal. i am lucky i have a lot of medical people in my family. see if thee is an ID doc at one of the hospitals and use them & use their labs. it will be billed by the hospital & they will let you pay monthly. also, contact your doctors office and ask to talk to a nurse practioneer (if they have one) to discuss insurance issues. beg them to help you find a way to get rid of this. i recall putting my head down on the counter at the pharmacy and balling my eyes out over the cost of my medication $1600. And i work for a fortune 500 company that SHOULD have good insurance. keep emailing me and i’ll try to help as best i can.l
          DOES ANYONE ELSE ON THIS POST HAVE ADVICE FOR DEE FOR THE FINANCIAL PART OF THIS?

          Reply
  17. Dee

    I am new to all of this and it’s quite overwhelming, so I am going to have lots of questions. My first question is about bowel movements as it was the D that brought me to c diff. My question is if the bowel movements are getting firmer does that mean this is clearing up or getting better? Does this even clear up or get better? So much to take in with this.

    Reply
    1. admin Post author

      There is such a thing as mild C Difficile so it may be clearing up. The only sure fire way to know is via medical tests however. C Diff can clear up but getting the stomach back to a bacterial balance is not a simple task

      Dave
      cdifficile.org

      Reply
      1. dee

        I’ve started on probiotics and Keifer and yogurt. I’m completely avoiding sugars. I am thankful that I at least have my appetite back as I lost it completely for 5 days. My new question (I’m gonna have lots of these along the way) how contagious is this to family members. I’ve read the article you posted but that doesn’t really help me. Is it ok to kiss, hug, touch? Another crazy question can I be intimate with my husband? What cleaners can I use around the house will Clorox bleach wipes work for toilet seats and what not?

        Reply
        1. Infection Watch

          Infection issues with C Diff have two elements. Some people have C Diff in their bodies for reasons as yet unknown but probably related to environmental factors. Others catch it. In non hospital situations this will almost certainly be from hand contamination. High touch surfaces in the bathroom should be cleaned after you use it. A family discipline of hand washing will also help. This will cut the risk of family infection to almost zero.

          Re Clorox you might want to read this page http://www.amazon.com/Clorox-35309-Healthcare-Bleach-Germicidal/product-reviews/B001B5OUZ4

          Hope this helps

          Dave
          Cdifficile.org

          Reply
    2. mary

      Dee…I agree with Dave. However, need to know if you had a stool sample taken and if the result was positive. Also, did they put you on antibiotics? If so, which ones. Start taking probiotics ASAP as they help restore “good” flora/bacteria. Eat lots of yogourt. Please let me know more and I can fill you in.

      Reply
      1. dee

        Doctors office did stool kit test it came back negative. Went to ER on Thursday due to cramping WBC came back 13.3 and stool sample came back negative for cytotoxin but DNA positive. They put me on vancomycin for 10 days. It’s day 6 I feel a little better but still have loose stools and mild cramping. Stools seem to be getting I guess more solid ay least there in 1 soft piece for the most part as opposed to a bunch of little soft pieces. I don’t know where to go from here. I only 4 days left on antibiotics and still have some symptoms. My stomach gurgles and rumbles and feels like its have contractions or spasms. Not all day long but throughout the day here and there. Afraid of how everything will be when antibiotics are over. I thought symptoms would have stopped by 3rd or 4th day. Help please!

        Reply
        1. mary

          dee–wow…that just doesn’t add up. i have had SEVERAL false negative stool samples. i recommend asking your doctor to refer you to an infectious disease doctor. that is who eventually saved my life. if your cdiff is high up in your colon, it is difficult to detect. you may need a colonoscopy. the minute the gastro guy did mine, he took a sample from up high in my colon & it came back positive. this was after several negatives. please push the doctors on this. let me know how it goes. you are in my prayers.

          Reply
          1. dee

            Mary, what doesn’t add up? I’m so confused with all this..ER doctor says since I’m still having symptoms after 6 days of being on antibiotics I might need to be on them longer. I asked should I go to GI or ID doctor he said GI. I have no medical background and none of the doctors explain anything. I’m so upset that they just don’t seem to care. I can’t seem to get a return phone call.

    3. dusty

      IF you are not on any medications and not taking anti-diarrheals which is a very bad thing to do with c-diff it may be clearing up on its own. go see a doctor anyways

      Reply
  18. Lisa Hurka Covington

    I am a c diff survivor, the same as many on this site. I had a fecal transplant in May of this year. I suffered with c diff for fourteen months and took 9 prescriptions of high powered hospital antibiotics, and every probiotic on the market, trying to kill the spores lurking within me. Unfortunately, nothing worked, except the fecal transplant. I am the same as Mary, whenever I see diarrhea or have a symptom that reminds me of my c diff experience, it triggers me back. I am getting better with this, thank God, but it does take time. Just always remember to wash your hands with soap and water, regardless of where you are. I have done 15 months or research about c diff and fecal transplants, and heard of the poop pill, being worked on by Canadian researchers, see link below. I will have an issue with the capsules, being I can’t swallow pills, they are very large in size. The person must swallow approx. 20 of the pills, or more.
    http://www.dailymail.co.uk/news/article-2442891/Poop-pills-feces-healthy-people-guts-patients-infections.html
    I am working on getting my story out Nationally, trying to educate and save lives. I am always here if anyone needs me. I know it is important to talk with others when coping with this beast. So many, including myself, have no idea what to do and where to turn when facing this hardship.
    Hugs to everyone. Please remember, you will get stronger and never give up!!!

    Reply
    1. dusty

      Thank you Lisa Im in the same boat so to speak. I will never forget that 9 awful months of hell. I contracted this as a super healthy 40 year old man all because of an antibiotic I took for a toothache. Im so glad you have recovered. Live strong

      Reply
      1. Lisa Hurka Covington

        Hello thank you for responding to me, I am so sorry you suffered so long with this horrible illness, God bless you. Can I ask you if you took clindamycin for your tooth? I am hearing from a majority of people I have talked with who had c diff they took clindamycin. I called the company who sells clindamycin and they have other companies selling it as well. I would like to go further on this issue with the drug company. Take care and have a beautiful day…

        Reply
        1. mary

          Lisa…yes, I took clindamyacin. I know so many people that have taken this drug & ended up with c:diff. Many dentists prescrible this! I took it because I had pneumonia. I know someone with c:diff who wanted to file a class action lawsuit against the drug company.

          Reply
          1. Lisa Hurka Covington

            Hello to the group….
            I am not sure who just wrote back to me that they had a friend who wanted to file a class action suit against the drug company after taking clindamycin? Sorry, I can’t seem to make out the way the comments are posted.

            I have phoned many drug companies discussing what I feel they need to do to protect people taking their durgs, and lawyers about starting a class action suit. My answer from one lawyer was heartless. They told me that I would have to pass away before they could take the case, which would be for my family. Another lawyer told me I could have contracted c diff from dirt.

            I am very upset that so many beautiful people are suffering with this horrible illness or have passed away. Many people who were touched by c diff would never be in the position they were if they had more knowledge about the illness, including myself. If anyone wants to get together with me via phone or email about moving forward with a class action suit, I would love to talk with you.

            I was mentioned briefly in a front page story in The Baltimore Sun Paper, coming out I call it…..
            http://articles.baltimoresun.com/2013-11-30/health/bs-hs-st-joseph-turnaround-20131130_1_midei-catholic-health-initiatives-towson-hospital/2

            I am a spokesperson in my state for suicide prevention and many rumors were circulating about my health for the 14 months I was sick, going from 125 to 100 in weight.

            I am keeping everyone on this site in prayer. It is so important to think positive and know you will get stronger each day…..

            Hugs,
            Lisa

  19. katfish

    I had a C diff infection about 3 months ago. I took Florastor for over 2 months with no problems, then I developed what seemed to be a yeast infection. But the gynecologist said it was just irritation, and blamed it on the way I launder my underwear. I finally stopped the Florastor, and within a week my Sx were gone. So I’m convinced the Florastor caused a yeast infection. Just FYI.

    Reply
    1. mary

      Katfish-i am happy that Florastor was able to help you with the cdiff. as it is a probiotic, i don’t know if that could cause a yeast infection but with 2 doctors in my family, i will definitely ask about it. here is a warning to all. distant family member (nephew’s mother in law) had c:diff 4 years ago. treated with antibiotics & finally became symptom free. all of a sudden, the diarrhea started again & she was diagnosed with cdiff once again. this scares me as even though i had the fecal transplant and cured, every time i get diarrhea or other symptom I previously associated with cdiff, i become very nervous. i will always be a proponent of the fecal transplant. there is a new pill out there that has been developed that is the same as a fecal transplant. don’t know the name but it is jokingly referred to as the “poop pill”. seriously, it is made of fecal matter. somehow that is grossing me out more than my fecal transplant did! has anyone else heard about this?

      Reply
    2. dusty

      I tried that stuff well lets say I tried two doses just to confirm the side effects. Worst gas imaginable. Im not kidding when i say i had gas ever 5 secs for almost 24 hours and my belly was so full of gas I was about to pop but my doc said some cant take it. I guess I was that “some”

      Reply
      1. Lisa Hurka Covington

        I took and still take bio k plus which is from Canada. There is only one store I can go to in my area that sells it in the liquid form. Bio K Plus is a probiotic and you can get it in liguid/drink which I take, can’t swallow pills, or in the pills. I still take this until today. Bio K is expensive but I need to make sure I am healthy not to contract this illness again. I also eat goats milk yogurt Trader Joes once a day. I was told about the bio k from Betsy McCaughy, who is the founder of an organization for infectious diseases in the US. Betsy speaks all over the US about c diff. She was the LT. Governor of New York. My husband heard her speaking on the radio and told me and I was able to connect with her after searching for her contact information. Betsy told me about bio k plus, I was taking all kinds of probiotcs and some with yeast/saccharomyces boulardii as well which I believe made me sicker putting yeast into my body. We can’t afford to get any type of yeast infection because the first thing we are offered is antibiotics for the condition. You may want ot look into the bio k plus.

        Reply
  20. B Johnson

    To be honest I think more needs to be researched into this aka “super bug”. When this was introduced into our lives a couple of weeks ago my mother was on her death bed. Almost has surgery twice to remove her colon which would have lead to a life changing adjustment to her life style via a colostrum bag. Not to mention it shut her liver, kidney & bladder down. Last week she was at 50% function to these organs. She retained so much fluid the 105 lb body felt like it was going to rupture & while I was on the phone with her she started gasping for air because her airways started to swell shut. She was that sick, for 10 days she was hospital bound. Good then bad happened more than a newborn could wet diapers. All because of C. Diff – and she was not on antibiotics, nor did she live in a assisted living or nursing home and she wasn’t recently in a hospital to contract this dangerous bacteria. As far as how she got it, no one knows. She has a life long room mate and watches my niece & my sister is there daily. No one else got it. It wasn’t until I question what the heck was wrong with my mom that they even found it. Dehydration my Florida Sunny Bottom…. so why all the different stories about how you get this bacteria and where it really comes from?

    Reply
  21. John

    steriplex sd is an EPA registered C.diff sporicide without bleach. I know it is safe to use on all hard non porous surfaces but not sure about photos.

    Reply
  22. carol

    My mother just passed away after succumbing to ci difficile.Does anyone know how to clean Photos after contact with this bacteria.We would really like to keep these memories but are afraid of contaminating our homes

    Reply
    1. Dustin

      I’m not an expert on this but I heard from my doctor it takes a certain % solution of bleach and water to kill the spores and he also said that is the only chemical that will guarantee 100% eradication of the spores. By the way, healthy individuals most likely will not contract c. diff. It takes a weak immune system or a disruption in the healthy gut flora (antibiotic use) to cause an outbreak of this nasty stuff. some people are carriers of this but do not get the symptoms. I think your pictures will be safe if you can use a bleach solution on them but I’m not sure if you can put that on pictures maybe try testing on a pic that is not worth anything. Hope this helps. my sympathy goes out to your family.

      Reply
      1. Shelley H

        IN RESPONSE TO CAROL:
        I’m so sorry for your loss. I get angry because there needs to be so much more public awareness of C-Diff! I would not have been put on a long regiment of a strong antibiotic for 2 weeks for a mildly infected ingrown toenail which led to my outbreak of C-Diff. I’d never even heard of it! I was quite ill&hospitalized for 5 days. Anyway, thank you God after 7 months, and a lengthy treatment of Vancomycin, it went away!!! But I am saddened to read of people dying from this awful thing.
        I hope some of your photos are in frames so you can just wipe the frames with a 10% bleach/water solution. (I moved recently and my former home was thoroughly wiped down with that bleach solution to kill any spores.)
        Dustin is correct about people getting C-Diff. It’s becoming more prevalent!
        I’m grateful for all the kind people on this site that gave me encouragement since last March.
        Take good care Carol. God bless.
        Shelley

        Reply
  23. Marjorie

    I have had C Dif since July. My doctor has kept me nonstop on Vancomycin for the last 2 months and now referred me to an Infectious Disease Specialist, hopefully for a fecal transplant. Keeping my fingers crossed.

    Reply
    1. MARY

      Marjorie: I wish you the best of luck. This procedure truly works. I was on Vanco on and off for 18 months (most on). The fecal transplant saved my colon. I have listed my person e:mail address. Please feel free to contact me if you have any questions about this procedure. mary.b.rabquer@owenscorning.com. Usually they have a gastro doctor do the procedure. The Infectious Disease Doc will refer one to you. God Bless.

      Reply
  24. Betsy Mitchell

    Why won’t this site that has been my info line for a year acknowledge that VRE is there? We need help !

    Reply
  25. Betsy Mitchell

    Bless you all, iI was inquiring if anyone has experience life after 12 weeks of vanco, and now having VRE.

    Reply
  26. Betsy Mitchell

    My 91 yr old mother has had c-diff twice during the past year. Was on Vancomycin for 12 weeks. No c-diff currently but she has had UTI ‘s that we know are caused by VRE, how successful has Linezolid or Synercid been to fight with out c-diff recurring? My family thinks she should try these antibiotics but I’ve read that Cdiff can be a side effect. Our doctors didn’t want to confirm C-diff so of course they’ve never heard of VRE. I don’t want her to take a med that will allow the C-diff to take over. Any information would be greatly appreciated.

    Reply
  27. Natalie

    I tested negative a few weeks ago for cdiff but the GI said due to my symptoms, he wanted me on antibiotics. I immediately felt better once I started taking the Flagyl but had too many side effects. No side effects with Vanco and felt great but now off of it and my symptoms are returning. He wants me now to taper the Vanco but I’m now concerned if cdiff is what I had. How common is it to have a false negative with cdiff?

    Reply
  28. Ruth

    Hi Nina, i’m looking at this blog because my brother was admitted to hospital yestrday with C-Diff. Your post got my attention because my son was in Bulgaria, on his own, for two years. He became very ill with a respiratory infection, so I know how scarey it is to be ill be in a different country. Thanks to an associate he finally got medical attention.

    How are you doing now?

    Reply
  29. Kara

    My 52 yr. old disabled sister has been sick for 2 months or more. The assisted living facility finally sent her to the ER 3-4 weeks ago. They determined she needed to have her gallbladder removed, but it was so infected they put her on IV antibiotics, put a drain in her gallbladder and sent her to a rehab facility until they felt she could undergo surgery. However, while trying to get rid of the gallbladder infection in the rehab she was diagnosed with cdiff about 5 days ago and immediately put her on Flagyl. Her stomach is bloated, she said her lower back hurts (kidneys?), and she still has constant diarrhea. Her only insurance is Medicaid due to her disability and the Medicaid coverage for the rehab facility ran out at the end of last week. Now, the rehab facility has gone ahead and scheduled gallbladder removal at a nearby hospital as outpatient surgery. This has been scheduled for the day after tomorrow. She has a pre-op consultation scheduled for tomorrow, but she is still having constant diarrhea, has to be in diapers, that are having to be changed. Should they be sending her a) out into the general public while she is so contagious, and b) scheduling gallbladder surgery while she still has cdiff, especially knowing that the assisted living facility will not take her back in that condition, and where would she go? I care for our 86 year old father, so she cannot come to my home in that contagious condition. Is this even legal? I am at a loss, don’t know who to call (other than maybe the health dept). These people are disgraceful. Has anyone dealt with anything of this nature?

    Reply
    1. Infection Watch

      They are between a rock and a hard place, as is she. Google fecal transplant and your state or city. It could cure the c diff in days.

      Dave
      Cdifficile.org

      Reply
  30. Pat

    how long after a patient completes flagyl and vancomycin treatment do they remain contagious? For how long must they continue to use clorox wipes with bleach to kill the spores?

    Reply
  31. Joe

    I was just wondering what possible ways there are to kill the c-diff endospore? It is an endospore so this is what contributes to reoccurances in some patients. So yes certain medication kill c-diff, but my question is what about acid from the stomach? I ask this because i have had reoccuring c-diff before and then had the symptoms again but developed strong food poisoning in which everything was flushed out of my colon along with very strong acid which i believed killed the c-diff. I was just wondering if this is something that has been found to be true in any other cases or if it is even physically possble for c-diff to be destroyed by stomach acid in the encapsulated spore form?

    Reply
  32. TJ

    I was wondering, how common is hearing loss with oral vancomyocin? I saw that as a listed side effect and am very concerned as I have hearing problems in one ear. I’m taking 125mg 4x/day. The side effects of flagyl were too much for me to handle but I don’t want to lose my hearing. My doctor didn’t offer difficid so I’m worried if the vancomyocin creates problems.

    Thanks,
    TJ

    Reply
    1. dustin

      I have constant ringing in the ears since being treated and the sides from flagyl were also very hard on my body to the point that I thought I had been poisoned. Maybe you should ask for dificid if the vanco doesn’t work.

      Reply
      1. TJ

        Thank you Dustin. I am off the vanco and have been experiencing stomach cramps but no hearing problems yet. I just hope I got rid of this awful infection. If not, I will take your advice and ask my doctor about difficid.

        Reply
  33. Dustin

    I had this disease for 5 months and know how bad that stuff is so I want to help whomever I can get well again. What didn’t work for me was flagyl, vancomycin, yogurt, acidophilus capsules, lots of fluids, rest, etc…

    what did work for me was the new drug dificid in combination with naturally fermented sauerkraut NOT the canned stuff (it must be eaten raw not cooked). I used Bubbies sauerkraut you can use any brand thats fresh refrigerated I purchased mine from the local health food store. I took the dificid 2x a day and sauerkraut 3x a day with meals about a 1/4 cup. I have had two negative tests now june 2012 and july 2012 just to be sure. I feel much better now and I use align probiotic for maintenance. I can’t say if it was the drug or the kraut that did the trick but this is what worked for me.I hope this helps someone out there.

    Reply
  34. Grandi

    My mother is in GREAT health at 84. On the go all the time. She has lost 12 lbs over the last 9 months but we had a family illness and death at that time. She and doctor thought it was from that until July. She suddenly is tired off and on for several days at a time. She had the orange colored diarrhea and very odoriferous stools. Shortly after that she was thought to have a UTI and then took an antibiotic. At that point she started yogurt every day.
    Since then the tiredness still comes and goes and the stools are somewhat still softer than normal.
    All tests come back normal. even the C diff.
    Could it have been C Diff in the beginning and then the yogurt be keeping it just down enough to stop or slow the other symptoms?

    Reply
    1. Grandi

      At this point after my mother had a CAT scan (finding nothing AGAIN) She drank the stuff and cleared out. No symptoms in the last 2 weeks. Still a mystery but glad she is better. She and I still think the C Diff was it. Any chance she cleared out enough but that it can come back?

      Reply
  35. MARY

    August 30, 2011. I suffered with C-Diff for 18 months. I had endured multiple (6-8) rounds of antibiotics. I had SEVERE gastro problems along with the diarrhea. I would test positive for C:Diff…go on antiobiotics…test negative and then within 2 weeks was symptomatic again. I went to an infectious disease doctor who treated me and then referred me to a Gastro doctor. The treatment he brought forward was not what I expected…a Fecal Transplant. I had mine on July 20th and within 5 days was feeling better than I had in almost 2 years. My bowel movements were NORMAL!!!! The color was NORMAL!! I have had very very limited diarrhea. Maybe once/week. The nasty C-Diff smell is gone. My son was the fecal donor and after I got past the “weirdness” of it all, I was able to try anything at that point. The procedure was done via colonoscopy and I was given a local. The hardest part was having my son “go” on command. Had to wait a few hours but it all went well. I am now 6 weeks after my procedure and I didn’t realize how sick I was until I started feeling better. I have heard some doctors are doing the procedure on the first or second positive stool culture. Please consider this option as I have feel it truly saved my life. After 18 months of suffering with this, I was sick and very depressed. I carried extra underwear with me, flushable wipes for me, clorox wipes to clean any toliet seat i went on and was worried every time I left my house. If anyone wants to contact me, please do so.

    Reply
  36. Mary

    Dave, is it possible to contract c-diff from my daughter who was in the hospital for several months and at the end she developed this after being on many antibiotics. Six weeks from the time she was in, my husband and I both had D, mine 3 days and my husband who never got rid of the D. He did test positive and I felt better. However, I do having odd cramping here and there with no more than 2 bm’s a day while some days none. No mucus or blood but a feeling that something is just not like it used to be. Could I have a mild case and if so, will it go away on it’s own??? Doctor does not want to test me unless I have watery stools. Thanks for any thoughts?

    Reply
    1. admin Post author

      in the absence of the major symptoms The doctor is probably right. Also sometimes people do not ‘get’ c diff while several around them may do because their stomach flora has something that keeps the c diff at bay. Recent antibiotic use or the absence of it can also be a factor.

      Hope this helps

      Dave Roberts
      cdifficile.org

      Reply
      1. Mary

        My husband has been on acid blockers (Nexium) for years and always had a tendancy toward D on occasion. I believe as I’ve read on medical websites that taking these acid blockers can change the flora in the stomach which probably made him more susceptible to the c diff. I was around my daughter taking care of her more than he and if I have it at all, it’s low grade. We are both in our early 60’s.
        Anyone taking these types of medications should be extra vigilant around any patient with c diff.
        One more question; if I had low grad c diff, could it be slowing destroying my intestines? Some docs say treat any possible symptoms while others take the road of caution. I get pains occasionally that come and go and do not want damage to my intestines.
        thanks again…

        Reply
      2. Mary

        My husband has been on acid blockers (Nexium) for years and always had a tendancy toward D on occasion. I believe as I’ve read on medical websites that taking these acid blockers can change the flora in the stomach which probably made him more susceptible to the c diff. I was around my daughter taking care of her more than he and if I have it at all, it’s low grade. We are both in our early 60’s. Anyone taking these types of medications should be extra vigilant around any patient with c diff. One more question; if I had low grad c diff, could it be slowing destroying my intestines? Some docs say treat any possible symptoms while others take the road of caution. I get pains occasionally that come and go and do not want damage to my intestines. thanks again…

        Reply
  37. Heather

    I have been fighting C-Diff since Sept of 2011. I lost my job in May due to all my medical absences. I was just offered a job at a school cafateria but also just got a call from my nurse that my c-diff is positive again. They are sending me to their infectious disease specialist to talk about stool transplant, but I can not get in to see them until Sept 18 2012. My doctor does not want to put me on medication for the c-diff as she believes it will not help. My question is should I be working if I am positive for c-diff? I have ok days, bad days and really bad days.

    Reply
  38. linda

    Hi i have c.diff, i work in a rehabilitation center for alcoholics. We had a client in who had c.diff, management failed to inform us of this and took no preventitive methods. I worked directly with the client and i now have c.diff. im on metronidazole at the moment. Do i need to remain off work, the client has now left, but we have other clients in who suffer from various degrees of liver problems due to alcohol abuse. I technically cannot afford to be off work as i dont get paid when im off sick so im hoping i can get back to work soon. Any info on this would be gratefully appreciated

    Reply
  39. Lisa Hurka Covington

    Trying to reach Dave. Thank you for your site, this is a nightmare! I had a root canal and to avoid drugs in my body, opted to have it without novocaine, only to come down with c diff from the three seperate perscriptions of clindamycin. I am a public speaker and known in the area of suicide prevention in Maryland for 20 years, as well as Nationally. I am sharing this because I have been on the phone with the TEVA and the FDA discussing I want them to put the word c diff on the bottle of clyndamycin, not just stating you can come down with bad diareah. They state it is on the paperwork but to be honest I have been researching and people as well as myself did not read the paperwork, we look at the bottle and that is where the information should be. I am still not right, and have had to give up attending events because of this illness that can be prevented if more know what c diff is and it is very important to be taking probiotics while on the drugs. I never heard of it and everyone I tell does not know what I am talking about. I found a wonderful lady after my husband heard her on a national program via radio who sells a drink called B.R.A.T which we have now talked and I would like others with this illness to know about. http://www.bratdiet.org/contact.html
    Dave, If you would be interested in working with me or know someone, at trying to make label changes with clindamycin can you please get back to me, I made sure I was able to get phones put on several bridges in Maryland for jumpers and I am very serious about this condition that is literally killing people and robbing them of their health. Thank you. Lisa Hurka Covington 410-377-4004

    Reply
  40. granny vanny

    Hola! A month after the 3rd course of clindamycin for a bad tooth, I developed nasty, super-soft, mucous-y diarrhea. My pcp put me on flagyl & the culture came back positive for c.diff. I had minor side effects of the flagyl after the 3rd dose; after the 6th dose I got a sore/stiff neck – could not turn my head or nod, an all-over headache & sore throat (painful speaking/swallowing – like big, sore lumps inside my throat). My pcp sent me to the ER where they did a cat scan, found no ruptured disk or anythig like that & sent me home with a prescrip for valium because my neck & shoulders were in spasm. I still have the headache & neck pain a day & a half later, tho it is better – I have not taken any more flagyl. Waiting to hear from my pcp. Does this sound like aseptic meningitis? Is there a good reason not to go straight to vancomycin? I am 70 yrs old and really don’t want to fool around with this! The neck/head pain scares me more than the c.diff.m thanks much, granny v

    Reply
    1. admin Post author

      Dear Granny

      We’re medical journalists who know a lot about c diff. But we’re not competent or knowledgeable enough to comment on your current symptoms. Sorry we can’t be of more help

      Dave Roberts
      cdifficile.org

      Reply
    2. Shelley

      Hi Granny V,
      Sorry to hear you’re suffering from this miserable C-diff too. I’ve had it for 5 months! Flagyl didn’t work, and have been on Vancomycin for months. Why in the world these PCP’s don’t want to refer us to Infectious Disease Specialsits SOONER, is a mystery to many of us! I mean if you have cardiac trouble, one goes to a cardiologist! My pcp just tried weaniing me off the Vanco and bam, once I was down to a pill a day the diarhhea, etc. came back. The odor and flatulence had never left! So I’m back on Vanco. and FINALLY beiing referred to an I.D. Dr. and I’m going to request a Fecal Transplant. Yes, they sound gross but many people on here have said that’s the only thing that cured them!!!! If you are thinking you might have meningitis, I would go to an ER and have a spinal tap. That’s nothing to mess around with. And if your C-diff isn’t gone then I don’t see why you’re not switched to Vancocin with the Flagyl giving you such awful side affects!!! Good luck and hope you get well soon! I hope I get my appt with the specialist soon.
      Shell

      Reply
      1. garrettmarsha

        I suffered with cdiff for five months and a fecal transplant cured me immediately. I have had to be on an antibiotic twice since and did not have a relapse. I wonder if the flora in my colon was changed and because of the transplant will not be susceptible to relapse. Don’t know but it makes sense to me.

        Reply
  41. Malinger

    Hello, After a perforated colon due to diverticulitis, I had to have a temporary colostomy. The incision didn’t heal quickly so my surgeon gave me Clindamycin to prevent infection. I had the symptoms of C Diff and had a stool test which, today was reported to be positive for C Diff. Last week, I started taking 500mg of Flagyl and a course of probiotics. I feel better but not 100% as far as bm consistence. Not watery or mucousy anymore, no fever or stomach pain. My question is will I be contagious in two weeks when I have a large retirement party at my house? I will be holding my 17 month old grandson and do not want to chance infecting him or anyone else present.
    Thank you for your response

    Reply
    1. admin Post author

      The contagion aspect usually relates to diarrhea. The fact that things are settling with respect to your stomach is a good indicator. Good hand hygiene will also reduce the risk from low to virtually non existent.

      Dave
      cdifficile.org

      Reply
    2. Tina

      I have had c-diff almost continually since I was hospitalized in February for nine days when I finally got diagnosed. I had had symptoms since last summer when I was hospitalized with pneumonia, and treated with extremely power antibiotics.

      Regarding having people in your home, and infecting. them. There are a couple of things I would do. Clean your bathroom, floors, doorknobs, and all surfaces with clorox wipes, and keep throwing them away. Each surface use a new wipe. Then after you have throughly cleaned everything with bleach, do it again. And, do clean telephones and remote controls with bleach wipes. Hand washing is important, but do others who use your bathroom after you, wash their hands, religiously. They could inadvertantly transfer spores to the tv remote control, etc.

      If you are having any symptoms diarrhea, or abdominal pain, gas, etc., then cancel the event. My elderly parents I do not visit until I have been on antibiotics for at least two weeks,, and am not having any symptoms. In the past 7 months, that has only been three or four days. But, better to be safe than to regret exposing others to this horrible bacteria.

      Reply
      1. barbara hix

        I have just been released from six days in a critical care hospital unit for a relapse of cdiff. While there, I talked to their infectious disease specialist who quoted the CDC that a 10% bleach solution is the only disinfectant to kill the spores on hard surfaces. On my suggestion, he searched stores’ variety of “Clorox” products and found, strangely enough, that they do NOT contain bleach! He explained that using any disinfectant or hand sanitizer will not kill the cdiff spores but will only leave them “very clean”. 10% bleach solution for hard surfaces and frequent significant hand washing with soap to remove spores from hands are the most significant protections for yourself and others.

        Reply
        1. MARY

          Barbara—please talk to your infectious disease doctor about a fecal transplant! i know it sounds gross but it worked for me after suffering severely for 18 months. I tried so many “remedies”. This truly works. My son was my “donor” and within 5 days I was feeling better and diarrhea and pain-free.

          Reply
  42. Nina

    Is it possible to have cdiff rec but no smell, a lot of mucus, watery or not so watery sometimes D? My GI thinks it could be UC, I was diagnosed with before the cdiff, but it was UC??, they were not sure….. I thinkit is the cdiff, I just finished 3 days cipro for my UTI, it is such a mess…. Help me, tell me what do you think it is….?

    Reply
    1. admin Post author

      We’re medical journalists, not doctors so we would be unable to comment re your symptoms. Only a fecal test will clarify exactly what it is.

      Dave
      cdifficile.org

      Reply
  43. Sherie

    Hello, Thank Goodness I found this website! I am at wit’s end. Was in the hospital witha Crohns flare in May. After 5 days was d/c. Still was sick and sicker at home. Had to go back to hospital because they thought it was still the Crohns. It was C-Diff. Was put on Flagyl but still sick. Had to be off Flagyl for two weeks to get tested again. So was tested 2 days ago. Docs office called me yesterday and yep, positive C-Diff again. Pharmacy didn’t have the Vancomican and has to order it on Monday. Please can anyone tell me what can happen if you are not able to start the antibiotics right away. I have had so much diarrhea.I am also on Imuran for Crohn’s. What type of illness’s can one get from C-Diff. I heard it ca kill also???..Scared…How do I know when it’s time to go back into the hospital??? Don’t want to go because that’s how i got it in the 1st place. I hate to complain but I feel like crud and am stuck on the potty so much. Please does anyone have any advice???

    Reply
    1. admin Post author

      The quicker you get treated the better is always true. But a few days may not matter unless you are very ill anyway. C diff, like Crohns, can in some cases inflame the intestine and cause colitis. It can kill, but tends to only do that to people over 65 with multiple other conditions. The Vancomycin may sort the whole issue out.

      Dave
      cdifficile.org

      Reply
  44. garrettmarsha

    Try to get someone to give you a fecal transplant!!! Simple procedure if you can find someone to do it. Just my experience is that it worked for me. There are even instructions for some ways to do it at home on the internet. They do it in other countries often.

    Reply
  45. Nina

    My cdiff is back today, i already went 10x or more, I can see the mucus, it is a lot, the smell is not as strong as it was before, but abdominal pain is terrible!!!! My GI told me to keep drinking and eating and wait couple days! In the main time I am taking cipro for UTI, am I going to die…… What should I do, how long should I wait… I dont have insurance and cant really get to ID doc, if I go to regular GI, and get Vanco prescrip I cant afford it! Already lost my apartment and my furnitures! I live with couple friends, havent worked in 2 months, havent seen my family in an year! They live in Bulgaria! I cant even travel to them! What am I going to do… Please HELP, HELP ME..

    Reply
    1. admin Post author

      C diff is usually only a killer in the very young and very old. But care is needed that it doesn’t develop into a major infection in your colon. The fact that you have another infection that needs cipro is a complication. If that clears that will help. The University of Chicago have also done some testing on fecal transplants. This often stops the infection in 48 hours. Find out more here http://www.healingwell.com/community/default.aspx?f=38&m=2158495

      Dave
      cdifficile.org

      Reply
  46. kimberly

    I took an antibiotic (clindamycin) and one week later was having loose (but not watery) stools with what I think was mucous in it, and cramps, bloating, and foul odor along with the bm’s. Was feeling sudden urgency to have a bm and was having bm’s 3-5 x/day which then increased to roughly 8-10x/day. Suspected C Diff.

    Went to the dr. and she put me on probiotics and told me if symptoms didn’t improve or worsened to come back (at time of visit bm’s were 3-5x/day – shortly after increased to 8-10x/day so I suspected c diff). She prescribed metradinazole (sp?) but I was afraid to take it because of side effects AND symptoms started to improve after 1 week of probiotics (down to 2 bm’s/day, no bloating or cramping, no urgency, no odor, normal consistency – mucous seems to have gone away).

    My question is – did the probiotics just make the symptoms of c diff go away, or are they keeping the c diff in check or did they kill c diff? If they are just keeping c diff in check, then it might be a good idea to take the antibiotic to kill it so I don’t relapse. But if the probiotics killed c diff, then I don’t need to take antibiotic. I only want to take the antibiotic if I absolutely have to. So if probiotics don’t kill c diff and it’s a possibility that it’s still in my system but dormant should I get a stool test to be sure and then take antibiotic? Or are probiotics and improved symptoms enough to say I’m cured?

    Reply
    1. admin Post author

      It sounds like the bacteria balance in your stomach has been restored. The main c diff drugs tend to help restore that balance rather than eliminate the c difficile bacteria. the one that seems to eradicate it is fidaxomicin. But is expensive and may not be prescribed by many doctors unless they feel you have an active infection causing symptoms.

      If things have calmed down many doctors would suggest you do not take any further medication for that recent infection.

      Dave
      cdifficile.org

      Reply
  47. Danielle

    Thank you. My dr. told me it was really good that I was trying to eat and gain weight. Its helping me stay Atleast a stable 85ish I was 80lbs when I was in the Hospital.

    Reply
  48. Melinda

    Danielle,

    I freaked out so many times because of this bug. Three times I was treated for it with antibiotics. I am still scared, but like you, we know we have to up the probiotics and get our body to process the nutrition.

    Thank you for telling your story – it helped me to know I am doing the right thing.

    Reply
  49. Melinda

    Danielle,

    After suffering these last 6 months and not gaining much weight I turned to whole foods, lots of broth, lots of quinoa with vegetables and with the help of friends I am up 6 pounds. I should be about 15 lbs more. No clothes fit and I lost lots of hair. This is why I focus on nutrition!!!! Ask for help from your friends to bring whole foods to you. For the last month I am taking Creon 6000. Its a digestive aid to help absorb food. It is very expensive!! I am up 2 lbs since taking it. When my friend told me last week to take lots of probiotics I did. Her husband just died from cancer and she studied to save him for over 5 years. Take them now, YES, I am taking Ultimate Flora critical care, 50 billion in one capsule. This is a terrible thing to happen, but I think the best we can do is eat real food, and drink lots of liquid everyday. Go to the Ceres.com website and read about food. I no longer eat sugar – just an occasional muffin at the coffee shop. Hope this helps. C diff is bad bacteria overtaking your good. Keep putting in good!!!!!

    Reply
  50. Danielle

    Melinda – will that work while still having c diff. I lost 20 lbs. I now weigh 84 lbs and wear a size 10 in kids. I’m small to begin with but this is too small. I’m trying to gain weight but I keep losing about a pound a week.

    Reply
  51. Melinda

    Last week a friend told me to start taking 8 probiotics per day and this morning for the first time since having c diff in December, I have a flat stomach. I went through lots of gas and the rest you already know, but I have hope that I will able to start gaining weight and feeling better. Eight probiotics mean 800 million per day.

    Reply
  52. Danielle

    They put me back on generic flagyl 500Mg 3x a day for a month. I still have trouble eating. Nothing looks good. I’m starting to have slower breathing and having to take deeper breaths for air. I smoke cigs. I dry heave all the time and constantly feel nauseous until I smoke weed then I’m fine. Once I smoke I’m not nauseated I stop dry hearing and I actually get hungry and eat. If I don’t smoke I will eventually puke from heaving to much.

    Reply
  53. Danielle

    I went today and they said i have the B toxin (cytotoxin) they cant figure out what strain I have so they sent me to a Infectious disease Dr. I have already seen one that was a year ago when all this started and he told me to take probiotics and go home.

    Reply
    1. admin Post author

      Don’t let them put you off now until there is a firm diagnosis and treatment plan

      Dave
      cdifficile.org

      Reply
  54. Danielle

    No they haven’t. Once addmitted I was given 500 meq of Flagyl 3x a day and reglan for nausea. Oncce out I was given 500mg of generic Flagyl to take 3x a day for 3 weeks. it went away beggining of febuary. Is back now. No one else in my house hold is sick from this. I havent been on antibiotics for atleast over a year before they found out I had c diff. I was 105 lbs. I am now 85lbs. I wear a size 10 in kids. im 5″1′. No one is giving me answers and my doctors are treating it like its not that severe. I probably have it better than other people do, but my medical background may say otherwise. I have always had a weak and sensitive immune system to where instead of getting strep throat. I would get scarlet fever atleast 8 times a year. What started all this last year was I was starting to have syptoms of rheumatic fever. I didnt have it but no once could figure out why i was still haveing abdominal pain a rash on both my knees swollen joints. I have found a way for me to force myself to eat and not feel the pain in my intestines.

    Reply
  55. Danielle

    I am 19 yrs old. I have been battleing with C Diff for a little over a year. At first they didn’t know what it was. I had it for 7 months till I couldn’t keep food down for a week and couldn’t even keep down water. I went to the ER on a friday at 9 am was there till 11pm and sent home with nausea meds. Couldn’t keep those down. Returned to ER saturday morning 9am was there till 7pm when they moved me into a room, because a doctor finally got me tested. I spent three days there, then got sent home. It’s been 5 months since I was admitted. I have been having intestinal pain for two weeks got tested again and came back positive.

    Reply
    1. admin Post author

      Have they advised you what strain you have. What drugs did they give you. Let us know and we’ll give you further feedback

      dave
      cdifficile.org

      Reply
  56. Charles

    I am a 54 year old male. I just spent 4 days is the hospital with c diff. The doctors told me I was the classic c diff patient. I was on antibiotics a few weeks back for a sinus infection then almost a week after I finished the course boom fever of almost 104 and severe diarrhea. I was on flagil, vancomycin, lovenox and IV fluids in the hospital for four days. now I am home with ten days of vancomycin.
    I don’t feel great yet but feel better. My abdomen still feels a little sore. The doctor told me he does not want me going back to work until I finish my vancomycin. i work in a hospital environment. I definitely don’t want to go back if I am contagious but that seems like a long time to be off to me? How much time off is typical? I don’t want to seem like I am milking the situation.

    Reply
    1. admin Post author

      I think the key is that he doesn’t want you to potentially infect others. There are penalties for hospitals when preventable infections happen as well as potential law suits. Take your tablets and take your rest would seem to be the best advice at the moment

      dave
      cdifficile.org

      Reply
  57. Joelle

    I contracted c. diff during chemotherapy treatment. First I took a course of Flagyl and then liquid Vancomycin. I am 5 days out of the vancomycin and am feeling strange. I am nauseous a lot of the time and my stools are watery and, today, full of mucous. I’m wondering if it’s back again. More so, I wonder, if I get my stool tested and am positive, does that mean I have to go back on treatment? I’m scared to do the Vancomycin again because I had bad rashes when I was on it and my face is still numb. What other treatments are available?

    Reply
    1. admin Post author

      Ask about Dificid (fidaxomicin). This has a better track record of eliminating C Diff

      dave
      cdifficile.org

      Reply
  58. Confused

    My daughter is 26 months old. A month ago she tested positive for salmonella, classic symptoms. She was already back to normal before the results came in. No antibiotics just probiotics bought from the Dr. office. Before the tests results came back, the ped. office had referred her to a ped. gastro b/c I saw blood in her stool. The gastro said she thought it was a bacterial infection but also wanted to test her for Celiac and ordered blood tests (CBC, celiac, vit D, B12, iron) all normal except low iron. She also ordered more stool tests which I took in yesterday from a sample of formed normal stool. Today I received a call from the nurse that said her stool test came back positive for c-diff. and wanted to call in antibiotics.

    Tomorrow is her follow up with the ped. gastro. I want to question why would we need to give her antibiotics when she is not symptomatic. What questions should I ask about c-diff and treatment, colonization vs. Infection. Should I question whether the test was preformed accurately or even needed done if the child was not ill?

    Reply
    1. admin Post author

      We cannot give medical advice on specific cases. Our background is medical journalism. BUT we would want to ask the following questions. Why treat a child who the tests indicate is simply a carrier – as are up to 5% of the population. Why risk further disrupting the intestine with antibiotics. What strain of c diff is it – is also worth asking. if it is the hard to combat 027 strain they may want to limit it’s spread. But if that is the case they need to brief you fully.

      dave
      cdifficile.org

      Reply
      1. confused

        I just wanted to thank you for your quick reply and very informative site. The doctor didn’t even bring c-diff up so at the end of the appointment I told her about the nurse calling me and telling me my daughter needed antibiotics for c-diff. The Dr. said c-diff lives in our bodies and as long as my daughter wasn’t having any symptoms then there was no need for antibiotics. If she started to have diarrhea then they would first test to see if c-diff was the cause. She said to continue on with the probiotics for the salmonella for at least 2 months.

        Reply
  59. garrettmarsha

    It cleared me up immediately and I suffered with it for 6 months with no signs of it subsiding. I had numerous rounds of antibiotics to clear it up and nothing worked. The fecal transplant worked immediately and never had diarrhea again. You need to talk to an infectious disease doctor or a gastroenterologist about it. It was a simple procedure and it worked for me.

    Reply
  60. Carin

    My son has C-Diff (less than 2 years old) that has been treated numerous times and does not go away. They feel that maybe he is a carrier (he was adopted from Ethiopia and tested positive when we brought him home). I am so worried about it being spread to my 3 year old daughter. When he gets poop on his clothes from a blow out in diaper i usually throw away his clothes b/c I am paranoid. This is obviously costly. Is there a safe way to wash them? i had read it can spread in the washer to other clothes?? Any advice?

    Reply
    1. admin Post author

      The spores are hard to get rid off but the action of the washer should make it hard for them to remain on the surface of the clothes. Hand washing for the whole family at regular times during the day will also help reduce C Diff risk. You might also want to ask about whether Dificid might be good for him. It seems better at halting c diff. There is also a body of evidence that suggests that domestic transmission and infection is fairly rare. See here for the academic article.

      dave
      cdifficile.org

      Reply
  61. Tracy

    My son is 1. The last two weeks of May he contracted his first cold, he had never been sick before and by June first he was no longer having a runny nose, sneezing etc. My question is, is the common cold enough to disrupt the immune system and allow C Diff to infect someone? My son was diagnosed with C Diff yesterday, after about 2 weeks of very loose, foul smelling stools, but not watery diarrhea. He had tons of energy, and appetite and was well hydrated. He has never been on an antibiotic, and though we just found out his play gym sanitizes with alcohol based cleaners, we fear that he didn’t pick this up at gym class, but maybe has an underlying condition that we’re not aware of. C Diff is not very common in the young, non antibiotic using population is it? Further, I understand that some young kids are carriers of C Diff. How do I know if the stool sample was tested for an infection, or if he was just a carrier? Is the loose stool enough to assume that he is infected? What is the likelihood of it living dormant until that cold came about and triggered it? Sorry, we are really at a loss as to how he got it. Thanks for your help.

    Reply
    1. admin Post author

      Some people are carriers as c difficile does occur in the environmemnt. There are sporadic reports of infection among non antibiotic users. You will need to ask your medical people whether they are confirming whether he is a carrier or actively infected. Re the cold. Good question but not one we can answer within what we know

      Dave
      cdifficile.org

      Reply
      1. Tracy

        Thanks, Dave. I’m curious now, say he is a carrier. Would his stool test come up positive, or does this only happen when there is an infection? He doesn’t have the watery D several times a day, though he does poop a lot, and it is soft and has that “foul odor”. Sadly, there are so many childhood diseases that this could also be, CF comes to mind. So, how do I know if the symptoms that he’s having are in fact C Diff, or from something else. What questions do I ask the lab to find this out? Further, if the smell is subsiding with taking the Flagyl, would it be safe to assume that the meds are helping/working? Is this med only prescribed to those with infections or would if help in other cases (CF, Crohn’s etc?), Thank you.

        Reply
    1. admin Post author

      The spores could be – there is no major literature on whether they can be actively infected. It is conceivable that they could pass on the spores via their skin to humans. But human to human transmission in the home is rare and animal to human is likely to be even more so.

      dave
      cdifficile.org

      Reply
  62. Mona

    My 1.5 year old has had cdiff since January. She had two rounds of Flagel, 1 round of Vancomicin and it wasn’t eradicated. Still positive with cdiff they’ve put her on Alinia. We give her probiotics twice a day. I’m concerned that the Alinia may not work – then what do we try?

    Reply
    1. admin Post author

      That drug is not usually used for c diff. Dificid is more usually used with persistent c diff as it seems better at stopping it coming back.

      dave
      cdifficile.org

      Reply
        1. admin Post author

          It is not a first line drug for c diff. There may be specific reasons why they feel it may work in this case

          Dave
          cdifficile.org

          Reply
  63. ayers

    PLEASE READ!!!!!
    I have a one year old daughter who has cdiff..she has been treated 5 times for cdiff in the last 3 months. (3 times with flagyl and 2 times with vacomiacin). I am friends with several doctors and they too seem to be baffled by this. Her symptoms include: severed loose stools (even some with blood), blistered bottom, weight loss of 5 pounds (although she has gained 2 pounds back), abdominal cramping, fussier than usual. I have even been giving her probiotics (florastorkids) to her restore the good bacteria…
    PLEASE! If you have any advise on a certain specialist to see or any other advise please let me know! She has an appt with one in a few days, but the more advise the better..
    PLEASE READ!!!!

    Reply
    1. admin Post author

      Ask them if she could tolerate difficid. It seems more effective at preventing further outbreakks

      dave
      cdifficile.org

      Reply
  64. monica

    Has anyone else had C Difficile with major muscle joint stiffness and pain? I have had a confirmed case of this nasty bacteria and am on metrodizonale. The diarrea was nothing compared to the crazy joint and muscle pain! I havent taken antibiotics in over a year prior to this. My co worker same symptoms as me was confirmed with it . My spouse and dad same symptoms and they are being treated metrodizinole as well. I am just afraid the bacteria has become stronger and is now affecting healthy (non antibiotic) individuals. I have wrote to BC centre for disease control with my worries of this as none of us were on antibiotics. C dificile is in the same family as c tetani (tetanus) could this be why I suffered MAJOR muscle and joint pain? My dad had his calf so tight his 2 toes stood up. The doctors are baffled and I really want to know why that happened to us!??? Now lets just hope these antibiotics help get rid of it as we have 3 children, who have no symptoms, thank goodness! Thanks in advance for feed back.

    Reply
  65. Lynn

    My mother recently died from c.diff. She had severe kidney problems before hand and was on dialysis. She had diarreaha for a while but would not go to the hospital. When she did her colon was already inflamed and toxins were in her stomach. The hospital could not put her on dialysis and within two days of being admitted she was gone. Nasty bacteria but folks should not ignore the symptoms.

    Reply
  66. PaGuz

    My “referrals” story is a little bit diferent… I finished my first round of Flagyl and I relased 10 days later, I did have the referral from my primary doctor but “I don’t have health insurance”, I had to make many calls until I finally found a specialist who will take me without insurance. The GI put me on Metronidazol for 21 days, I am currently on day 10 and I feel better, eventhough I look awful as I have lost 8-9 pounds, I’m just 94 lbs! GI told me it is very important to finish the 21 days, no less than that.

    PS. is any of you registered at http://www.cdiffdiscuss.org? I’ve been trying ro register since I was first diagnosed (April 2012) but I have not be able to register. Please help!

    Reply
  67. unlucky

    I was wondering also if anyone knows what the long term damage is after suffering cdiff and sepsis..I had to be operated on and i found one article stating that the long term status is not good. This article was talking about people with extreme cases that needed a operation to save their life from cdiff which is me..But i am unsure how much weight i should put in it. If anyone has any info on any long term complications from cdiff or sepsis i would very much like to read or hear about it. thanks..i am including a link to the article that i am speaking about that says the survival rate is poor past 5 years after suffering cdiff and having a operation to save your life from it. http://www.springerlink.com/content/74pv1442kk1005q6/ Thanks again i love this site for information and i wish more people were aware of this disease and the symptoms to look for….

    Reply
  68. unlucky

    Well this is a update to my above story…i have been trying to tell the doctor since i got out after almost dying with cdiff from the hospital that i felt sick still. He said it was rare to get it in the rectal stump which is all i have at this moment because i had a ileostomy done to save my life from cdiff. They were planning on putting me back together down the road but now i went for a scope today and i dont need to wait to hear the news i could see it was back on the screen. The doc took a biopsy of something also and sent it away asking for a diagnoses of either colitis or cdiff . I am frustrated because last week after waiting months sick the infectious disease doctor finally put me back on vancomycin via water enemias which i have to do myself at home. Half the time i am too sick to being doing these even. He had also told me that i didnt have to worry about getting it in my small bowel or ileostomy yet today i heard from the hospital infectious disease person that yes i could get it there..even though its rare. My question is has anyone out there had any experience with reoccurring cdiff in a rectal stump and or cdiff in the small bowel or ileostomy?
    I was on vancomycin for 10 days back in march but it obviously did not clear it up. i was released from the hospital in february of this year…and relapsed as far as i am concerned right away because i really do not think i was ever clear of it. I am passing what looks like pudding material even though i have no connection to my rectal stump out of the rectum. This is scary stuff and they keep telling me i am not contagious to my family. I have small grandchildren who live with me and a sick son who has no immune system and who they just put on a antibiotics to build up his immune system who i am worried about and hoping i do not pass anything on to them. At this point i do not know when i will be put back together or if i have damage from being left with cdiff active in my body which could have caused enough damage that i might never be able to be put back together again. If the latter is so i think i will go off the deep end….please say a prayer for me…and best of luck to all of you that are still suffering from this terrible disease…

    Reply
  69. sharon

    I hope that everyone pushes their primary dr. Mine has been a nightmare. I called and set up my own appointment with an ifectious disease dr. I am not willing to wait 5-9 months after reading what everyone has wrote. I cannot believe that they want us to keep taking these antiboitics when they tell you that you will become immune to them. What are we suppose to do. I am so afraid that I am going to pass this onto someone that I havent wanted to leave my house. How am I suppose to tell someone I am sick but when they look at me they think I am crazy because I look the same except a liitle paler and thinner. They keep telling me to keep up what I am doing by losing and. Thanks is all that I can do and go home and cry

    Reply
  70. Ellen

    Both of my parents have C-diff. My 84 yr old mother contracted it while in the hospital in Feb. I tried to explain to my 89 Dad how important it was to Clorax the toilet and wash his hands a million times a day. Well he got it too. Now I have a sore throat and have waited all week to see if it would get better without AB. Throat still on fire. I will begin my Zpack today and keep you posted. Keep your fingers and toes crossed because I DON’T WANT C-DIFF.!!!!!!!!!!

    Reply
  71. Courtney

    Thanks to you all, in the last two hours I’ve managed to get an appointment with an infectious disease specialist! I talked to a woman there who said I’ve done the right thing. I just want this to be over. My appointment is on June 19th. I will keep you posted!

    Reply
  72. garrettmarsha

    I ended up hospitalized and that is when things started happening.
    The family doctor brought in a GI who referred me to the Infectious Disease doctor who told me about the transplant. The GI said that “you are 55 anyway, you need a colonoscopy so lets do both at the same time.” The donor was my husband which made it so easy.

    Reply
    1. Shelley

      Thank you Garret. I’m finally going to be referred to an Infectious Disease Specialist! And I’m going to request a fecal transplant asap. 5 months of this miserable disease! ugh. Thank you!
      Shell

      Reply
  73. garrettmarsha

    Does your stool have that cdiff smell? It is not hard to recognize because of the horrible smell. If you had been on vanco before the colonoscopy then, of course, you would not look like you have it. I would go to an infectious disease doctor then have him recommend someone to do bacterial transplant. I had a transplant via colonoscopy and walked out of the hospital and never had an episode again. I had it for over 5 months, was on flagyl, vanco, chrylo, nothing worked except the bacterial transplant.

    Reply
    1. Shelley

      Garrett,
      I’m ready to Get a FT but having trouble getting primary physician to refer me to the hospital that has the Infectious Disease specialists. He wants to keep me on Vanco for 2 more months and I’ve been on it for about 2 months!

      Reply
  74. Courtney

    I am a 28 year old female and I got c.diff three months ago after being on several antibiotics for a tooth infection. I picked it up from my grandfather who was in a nursing home and ended up passing away from it. Anyway, I took a round of flagyl and two rounds of vancomycin and actually started to feel better, normal stools. I have a history of IBS and I have had my gallbladder removed. A couple weeks ago my gastro ordered a colonoscopy and following the prep and the colonoscopy, I had horrible diarrhea and still do. They ordered a stool test and sure enough I was positive for c.diff. The doctor on call gave me more vancomycin. I just finished that and still feel somewhat sick. I have loose but formed stools but just horrible stomach cramps. I talked to my GI and she said that my colonoscopy showed no signs of c.diff so she doesn’t want to put me on any more antibiotics and she said that just because I tested positive for the bacteria, doesn’t mean I have the infection so she doesn’t want to order another stool test. She wants me to take fiber and immodium but I am so scared to because I really do think I still have it. I need advice!! Should I be pushing this doctor more? Should I be seeing someone else? Can you have “normal days” with c.diff and then a bad day the next? Does anyone have issues post-c.diff? HELP!

    Reply
    1. Shelley

      Courtney, I’m frustrated too. Have had C-diff since 3/14/12. Flagyl didn’t work. I kept getting dehyddrated. Went to local ER and was admitted, there for 11 days to rehydrate,put on Vancocin and rest. So weak.I’m 55 feeling 90! Saw my gen.prac. Dr. For follow-up. Was starting to get diarrhea again so he doubled the Vanco. I don’t have diarrhea but small c-diff stinky bm’s. I’m bloated,nauseous and tired. I’m no Dr.but everything says no Lomotil because if toxins form they shouldn’t be kept inside. I want to be referred to a big hospital less than 2 hrs from here as they have an Infectious Disease Dept.with specialists in C-diff but he won’t refer me! After all my research it seems those of us who don’t easily get rid of this, SHOULD go to a specilist in Infectious Disease! Some C-diff strains are harder to get rid of. At this point I’d even consider FT if it would rid me of this awful thing! Good luck&hope you get a 2nd opinion! 🙂

      Reply
    2. admin Post author

      There are issues with c diff tests showing positive when the infection has run its course. We are well read in the issues around c diff but can’t really comment on specific cases. Take the advice re fiber etc. It will not cause harm

      You should perhaps seek another opinion if diarrhea returns in a major way

      Dave
      cdifficile.org

      Reply
  75. Maye

    my brother was hospitalized for c-diff recently. We think, after finding out the symptoms, that he may have had the active bacteria for as much as a year. My question is how do we find out if the spores are still active in his apartment? His general housekeeping is very, very bad. He is being released from the hospital and wants to go home, but he is severly immune compromised due to transplant. Also, how dangerous are the spores to family members who are elderly and have had antibiotics recently? We are worried and don’t really know how to approach the situation.
    Thanks.

    Reply
  76. T. Kercheval

    I am looking for the nearest facility to Gainesville,Florida for a fecal transplant for my mother. She is 84 years old and has had C-Diff for 7 months now. She had taken all 3 medications, vancomycin, flagyl and difficid. She has been on vancomycin long term and when she goes off it, the diarrhea and c-diff returns. We are ready for the fecal transplant in hopes of finally curing her of this horrible infection.

    Reply
    1. Louis Cam

      My mother had c diff for months also. The gastro doctor used a step down approach when getting her off of the medication, and she finally recovered. Instead of suddenly stopping the med, it is gradually decreased over several weeks. That was the key to her recovery. She was also put on Florastor. Hope this is helpful.

      Reply
      1. Louis Cam

        One more thing : we were told in the hospital, that 3 separate negative stool samples were required before stopping or stepping down treatment. One negative test is not accurate

        Reply
  77. C.Donovan

    My husband entered the hospital with multiple illinesses, vomiting (going through chemotherapy 4 months prior for non-hodgkins lymphoma, diagnosed with pancreatic plus he was a liver transplant 15 years prior ). We were told then that he had aspirational pneumonia and a feeding tube was inserted and placed on antibiotics. He was discharged to a nursing home for rehab. Approx.2 weeks later after low grade fevers and loose bowels and vomiting green ,he was transferred to the hospital ER – and we found that the x-ray showed his stomach/groin area was loaded with cdif infection. He died less that three days later. My question is why would a patient be transferred to a nursing home or why would a low grade fever and loose bowels or green vomit be let go so far. Patients deserve better. I don’t expect a definite opinion, but what can I do to help others.

    Reply
    1. Infection Watch

      Long term care facilities are often reservoirs of drug resistant infections. They are also often less skilled in medical matters. Your tragedy is part of a wider issue with type of facility

      Dave
      Cdifficile.org

      Reply
    2. Shelley

      I’m so sorry for your loss. I’ve had c-diff for nearly 3 months. I have learned that I must be my own advocate.(Squeaky wheel gets the grease! Does not make 1 popular.) Since the Flagyl didn’t work I’ve had an 11 day hospital stay mostly due to dehydration&weakness. I want to do to Dartmouth which isn’t that far away and they have an Infectious Disease Dept with specialists in C-diff but they won’t give me a referral! All of us with stubborn C-diff and/or their caretakers need to speak up loudly!!! It can be deadly and it’s miserable! I’d never heard of it nor had most people I know. Seems the medical community doesn’t make patients aware of it like MRSA. WHY NOT?

      Reply
  78. sharon

    Went into hospital for a fatty tumor. They did all kinds of test. Short story is they found that I had C dif. I was not told until 13 days later when the surgeon that took out my fatty tumor. Is this correct that the hospital or Dr does not have to notify patient? Half of the problems I have had are caused by C dif. I hate the flagyl, it makes me so sick and am allegeric to vanco. What are my options? The Dr said oops, someone was suppose to call me. Do I have to worry now forever that I will continue to get C dif? Do I have an obligation to any and all to let them know that I had it?

    Reply
    1. Infection Watch

      About 1 in 30 people are c diff carriers. The only drug that seems to halt it long term when it develops into an infection is Dificid. It may help if you mention your c diff status when getting other treatment as this will help the doctors make better treatment decisions.

      Dave
      Cdifficile.org

      Reply
      1. sharon

        Okay, so I guess I would like to know is should I be retested after taking all of my flagyl or just put it out of my mind. From what I have read here and on other websites, this is a very serious disease. My family Dr. doesn’t seem to concerned but I am terrified. Any suggestions would be helpful.

        Reply
  79. C Crowley

    My son has been sick for 6 months with c-diff with none of the normal symptoms. The only things he has is vomiting( which has stopped) and abdominal pain. He has had 4 doses of antibiotics in 2.5 months (2 flagyl, alinia and vancomycin). He continues to be sick. He was never in the hospital before symptoms and had not been on antibiotics for a long time prior. I am baffled as to if we are treating the right thing. His stool samples come back positive.

    Reply
    1. Shelley

      I agree! I’ve had it since March 14th of this year. Flagyl didn’t work and I’ve been on Vancocin for weeks. Diarrhea is better but it’s not gone! Ugh!

      Reply
  80. julie

    patient still has symptoms (diarrhea) a week after antibiotics for c-diff were completed. Patient was told she may have symptoms for several more months but no further treatment is recommended. Is it accepted protocol to just monitor patient’s symptoms and not prescribe further antibiotics?

    Reply
    1. Infection Watch

      We can’t really comment on specific cases. But there are degrees of severity. Two key factors in treatment would be whether the patient has other conditions and whether there is internal inflamation and pain.

      A small percentage of people do seem to have chronic c diff

      Dave
      cdifficile.org

      Reply
  81. theresa

    I had C diff this year. Successfully treated with Flagyl. Is it safe to work at a Dr’s office or hospital once you have had C-diff because of risk of reinfection? I am very concerned because of spores that could be living in the hospital.

    Reply
    1. admin Post author

      The C diff drugs do not always rid the body of C Diff. Balance returns to the stomach and the patient recovers. Another bout of C diff could be from existing c diff in the intestines or a new infection from another source. When taking antibiotics in the future there may be a risk of c diff returning. With respect to the hospital hand hygiene protocols should help prevent you from getting a new infection from a patient.

      Dave
      cdifficile.org

      Reply
  82. Shell

    I was put on Bactrim for an infected toe(ingrown toenail)&kept on it for 15 days waiting to see a Podiatrist. At about day 11 of Bactrim, I got horrible watery diarrhea,nausea,102 fever,stomach cramps and I thought it was the flu.I went to Dr’s and was severely dehydrated.This is when I 1st heard of C-Diff.They stopped the Bactrim&I gave 2 stool samples. I do have C-Diff and am on the 7th day of Flagyl. I started feeling better about 4 days on Flagyl. But I was SO sick. I think more people should be aware of C-Diff! I pray the Flagyl will rid me of the C-Diff and never have a reoccurence. Oh, also I was told to Take Lomotil for the diarrhea which I’ve since learned is NOT good as one wants the toxins out of the body. I’ll be re-tested to see if the C-Diff is gone. If it isn’t I’m going to go see a Gastroenterologist a.s.a.p.! Why is C-Diff kept such a secret? It’s dangerous when untreated and none of my friends had ever heard of it either! Wish me luck! 3/26/12.

    Reply
  83. garrettmarsha

    okay, thank you. I am taking a z pack for strep throat. My doctor said you have to take antibiotics sometimes because strep throat or a uti if not treated has the potential to kill you. So I am taking the chance. I will let you know what happens

    Reply
    1. Shell

      Hi GarretMarsha, I hope you’re feeling better and that the Z-pack didn’t start up c-diff. I’m upset the general public is unaware of this awful organism! It seems no one has heard of it unless they contract it! If more people knew about it, when the c-diff symptoms start after extended use of antibiotics, they’d seek help. I thought I had a G.I. Flu! Feel better.
      Shelley

      Reply
  84. garrettmarsha

    I had a bad case of cdiff about five years ago. No antibiotic helped, so I had a fecal transplant and from that day on I never had a recurrence. I have not been on an antibiotic since, but now I fear that I have strep throat. I do not want to go to doctor in case he wants to put me on an antibiotic. Since I had the transplant, will I be less likely to get cdiff again? If they want to put me on an antibiotic for the strep, which one is the safest?

    Reply
    1. admin Post author

      The fecal transplant does tend to redress the balance in the gut. I’m not sure whether the science is exact as to whether it cleanses the gut of C Diff altogether. I think you will need to discuss your antibiotic situation with an MD or specialist as we would be speaking outside of our current knowledge if we ventured an opinion.

      Dave
      cdifficile.org

      Reply
  85. Ann

    My husband had his aortic valve replaced in September. His Dad has c-diff. He was around his Dad before he was diagnosed with C-diff. He wore the gown and gloves in the Hospital with his Dad but I am really concerned about him. He and his siblings are going to clean his Dad’s home before he comes home from the nursing home, just wondering if he should even be involved. He is doing great with his recovery from his surgery just don’t know how cautious he should be with the c-diff. I didn’t want him to go around it at all but he was with his Dad before they decided he had c-diff. His Dad wasn’t big on good hygiene before he got c-diff.

    Reply
    1. admin Post author

      If his father contracted C Diff or experienced the full infection at the hospital then the chances of your husband being a carrier are small. The gowning process will have helped at the hospital and the risk will be low at the home. You might like to check this article also: http://www.c-diff.net/risk-of-family-clostridium-difficile-infection/

      If there was other work he could do on behalf of the family at this time that would be great – but if he still helps with the cleaning the risk is small.

      Dave
      cdifficile.org

      Reply
  86. ron cooper

    my wife was diagnosed with c diff has all kinds of tests and was on flagyl and a couple other meds her stomach is swolen and will not decrease the doctor treated her and said she was clear of c diff but the symptoms still persist she is desperate

    Reply
    1. admin Post author

      Does he know that she is clear of C diff because he has tested. If he has then there may be some other intestinal issues.

      Dave
      cdifficile.org

      Reply
  87. Jessica

    I had C-diff about 6 years ago. I was treated in a clinical study and fortunately received the experimental drug and not the placebo. I was involved in treatment for 6 weeks when I was finally back to normal. When I was released from the study, I was told that I could suffer a recurrance and to stay away from any future antibiotics that may be prescribed for me or at least inform an emergency room or future medical provider of my history. I’ve had no reason to need an antibiotic until recently. I may need to take one for a dental issue. Should I be worried? Is there something that I can take that will be mild enough to take care of the tooth but not proboke a return of the C-diff?

    Reply
    1. admin Post author

      We’re not medically qualified here at cdifficile.org. We’ve studied the infection in depth as medical journalists and have a broad knowledge. You would need to seek medical advice re the right drug to use re your dental issue. If the clinical trial was for was is now called Dificid there are less cases of repeat C diff with this drug

      Dave
      cdifficile.org

      Reply
    2. Nina

      Hi, I have cdiff, I went under colonoscopy, and they diagnosed me with uc???, two weeks later they did the cdiff test and it came up positive! Today just finished my 14 day vanco, i am not really improving, just now i go 5-6 times to the bathroom, instead of 20, but it is not firm at all, and still the smell!!!
      Please tell me someone who can help me with FT or some other medication, i am really scared! I am 32 and moved over from Bulgaria 7 years ago, dont have anyone here, no family, just couple very busy friends! Lost 13 lb, and i cant gain even half a pound, i think i am still loosing!!

      Reply
  88. Keith Kritch

    When contracting C-dif in a hospital on average how long would the treatment of it extend a patients stay in the hospital. Would the hospital be reimbursed by insurance for the additional days in the hospital. Please let me know. Thanks.

    Reply
  89. unlucky

    I am in my late forties and i was being treated for a bacteria infection of my finger . The doctor had told me about a risk of diarrehea and throwing up but i didnt catch the name of it.Anyway within a week of starting this new antibiotic i got sick and called his office.They told me i had the flu and to not go to the hospital they would check with me on monday. In the meantime my daughter tried to get everyone to convince me to go to the emergency she knew i was not thinking right. I ended up getting my family to call a ambulance on late saturday. I woke up 3 weeks later from a coma and i hardly remember anything except for the ambulance and talking to the doctors office. I guess once i got to the emergency it took 2 days to figure out i had cdiff and by then my breathing was shallow from my swollen bowel. I had gone septic and my organs were shutting down. 5 doctors argued about what to do and they ended up getting family members to sign to remove my bowel and do a ileostomy. My chances of surviving that were not good but got worse when 5 hours after that surgery i had internal bleeding and lost 4 liters of blood and they had to reoperate to stop the bleeding. My heart stopped twice in those 3 weeks and they had to put a needle into it to start it. I woke up not knowing where i was and unable to move from all the water and swelling in my body. I was like a beached whale. I am not sure why i was so swollen if it was the cdiff or all the iv liquid they gave me. My skin was breaking and water was leaking out of it. Supposedly in a few months they can reverse the ileostomy since i have a small piece of my large bowel left. That is if i do not relapse with cdiff.
    This is a scary disease and anyone on antibiotics should be aware of it. I was not in a hospital when i got it. It is starting to attack healthy young people and kill them. I guess i asked for a priest and told everyone i was dying. I knew i was dying and so did the doctors. This disease is getting stronger all the time and i think the public needs to be aware of it and something needs to be done. To say it only kills those who are sick or over 70 is not correct.
    This whole thing has been a nightmare…..but i am alive….Be warned it can happen to anyone…but especially those on antibiotics…

    Reply
    1. Shelley

      Oh my gosh Unlucky, you went through hell. I had a tiny toe infection&put on strong Bactrim for 2 wks and got sick with what I thought was the flu. The Dr. Didneven explain C-diff but took me off Bactrim immed. I tested positive.I’ve been fighting it since 3/14/12. Flagyl didn’t work and I’ve been on Vancocin (&Pro-Biotic clend good bacteria capsules). I don’t have diarrhea often but small, c-diff stinky bm’s, stomach hurts, nausea,weak. Sooo sick of it. Why doesn’t the public know about this? MRSA yes, C-diff no. I’d even have a FT at this point I’m so sick of this. What you went through is terrifying! I’m trying to see an Infectious Disease specialist as they know C-diff. Hope you are feeling much better!

      Reply
      1. unlucky

        Hi shelley…Thanks so much for taking the time to wish me the best of luck. How unselfish of you when you have your own problems going on. I hate hearing that anyone is sick with this terrible disease which i have been fighting since january of this year. It has been hell and if you read my update continues to be hell. Everytime they tell me that something is impossible because its rare i seem to pull off the impossible and pick up the rare parts of this disease…I agree with you on the public knowing about this because i had never heard of it until i got sick. And here a friend of mines father had died 4 years before me with the same thing at the same hospital i was in. Please be very careful . I am not sure how long i had it before i went septic but once i went septic it took off in a matter of days i was at deaths door. I can tell you i felt sick for months but was on iv antibiotics so chalked it all up to that…The best of luck to you and stay in touch i will be praying for you..i did a update at the bottom of the page……

        hugs to you..and all the best my prayers are with you…

        Reply
        1. Shelley H

          To Unlucky,
          I haven’t been on this site for awhile. How are you? I am thrilled to say that after having C-Diff from March 2012, after a long,miserable illness, I was on Vancocin 250mg x 4/day. I was actually looking into a home fecal transplant as the two Drs.who could do it were both like 5 hours away &my donor couldn’t travel. Anyway, the symptoms went away! I was weaned off the Vancocin. After a few weeks to be sure Vanco.was out of my system, I had a stool C-Diff test and it was negative!!!!! I am so happy!
          I had bronchitis recently & friends were being treated with antibiotics. I went to my PCP and he agreed NO ANTIBIOTICS! But I did go on a short run of Prednisone (steroid) and also used my nebulizer and lots of rest and fluids. I hope I don’t ever need antibiotics again as I’m afraid of a reoccurrence!
          I hope you are doing better!
          Shelley

          Reply
  90. Melinda

    Reading that those over 70 are the ones to die scares me. I was a riding my bike 6 miles a day. Because of kidney stones I went to see a Naturopath to see if he could help me. After a stool test he said I had a bacteria. He prescribed clindamycin and within 7 days I was very sick. I don’t remember the next 5 days before I went to the hospital. They said I was freeze dried!! My face was black and blue from falling at home. After 4 days in the hospital I told my doctor I was going home. It within a week it came back and I went from flagyl to vacomyacin and then to Xifaxan which kills all bacteria in your intestines. He Gave me Florastor as a probiotic to take for 7 days. He is out of town and I would like to know if I should continue taking Florastor for a longer time. Also I 66, very skinny and am unable to gain my weight back. This started in December. This scares me – went from nicely fit to an old lady.

    Reply
    1. admin Post author

      We are unable to comment on specifics re medical cases. We can offer information but not advice.

      Sorry to not be more helpful – but you might like to check out the florastor we site which says this:

      Long-term use of Florastor is not associated with complications. After repeated oral doses, Florastor transits through the digestive tract attaining steady-state levels that are maintained throughout the administration period.†5 Florastor is no longer present in stools 2 to 5 days after discontinuation of treatment.†2

      http://www.florastor.com

      Reply
  91. Brianna

    I have had C-Diff for a little over 1 year straight now, i am 29 years old. I have been on anti biotics the entire time trying to fend it off. Will i ever get better? Or is my body now screwed for the rest of my life?

    Reply
    1. Lisa Hurka Covington

      I had c diff for over a year and had to have a fecal transplant, or I would not have made it, I am in my 50’s. I went from a size 8 to a 2 and it has been since May when I had the transplant, that I am thank God, finally starting to feel like I can eat and feel alive again. I have had other illness from the c diff that developed, blepharitis/eyes, roseca/face, full blown osteoporosis in my spine from not being able to eat correctly, and ostepenia in my hip, edema in my feet and I had neuropathy in my feet which has gotten worse from my nutrition issue. It is critical if you have this disease for a year, I would highly recommend for you to check into fecal transplants, it saved my life.

      Reply
      1. mary

        In response to Lisa Covington. A fecal transplant also saved my life. i suffered for 2 years with this dreadful condition. Tried 6 rounds of antibiotics at the cost of anywhere between $800 & $1600 each (and I work for a fortune 500 company–terrible insurance). I was the first patient in toledo, ohio to have this procedure. IT WORKS! within 5 days, i was symptom free. contact me with questions @ mary.b.rabquer@owenscorning.com

        Reply
  92. janet

    I was just told today I have c diff. I have had cramping, recal pain, mucus in my stool,( I only had diarreah for a couple days) and a slightly upset tummy. I feel fine otherwise. But after reading alot of different things I am so scared! Was is the survival rate of people? Is catching early going to help me? I am really scared after reading it can be fatal!

    Reply
    1. admin Post author

      The vast majority of those who have c diff survive, recover and have no further episodes. Those who die are often but not exclusively over 70 years old and usually quite unwell with other conditions which the c diff makes harder to fight.

      Hope this helps bring clarity

      Dave
      cdifficile.org

      Reply
  93. Royce

    I had c diff several years ago and it almost killed me and I already have a very compromised immune system from way back before the c diff (no neutrophils) and now the docs think I might have it again. What are the chances of me already spreading it to everyone else without me knowing it? That is if I do have it again. What are some ways to prevent the spread of it if I do have it because I am really concerned for people around me getting sick from me possibly having it. The doc has sent a test in. My doc (s) are infectious disease so they know what to do. I have been a patient of theirs for a long time. My last question is: Can you tell me how long before they know the results of my stool sample? I gave it to them this last thursday.

    Reply
    1. admin Post author

      Hard to say how long as hospitals have different ways of doing the test and capacities. The risk to family members of them becoming carriers is thought to be low. The risk of subsequent full blown infections even lower. See this page

      Dave
      cdifficile.org

      Reply
  94. alison

    I was an 3 types of antibiotics (so for about a month) amoxicillin, zpack, and amoxicillin with clavunate. I had loose stools while taking the amoxicillin with clavonate but only twice a day and they were dark in color. I had to restart the amoxicillin after some dental work and last night I got really gassy and today I am passing watery, mucous like stools. It has that wierd C-diff smell to it, too. The highest fever I had was 100.0. I am very weary of going on another antibiotic, do you think this might go away on its own? Thanks!

    Reply
    1. admin Post author

      You need to get a medical opinion if you are concerned. We would be wary of a wait and see approach and are not qualified to offer opinions. We seek to provide information but cannot comment on specific cases

      dave
      cdifficile.org

      Reply
  95. Chris

    Hi Shondell,

    My son had cdiff too when he was 1 after taking antibiotic for a week…. his doctor recommended a probiotic Florastor kids. You may also want to google Dr. George Russell of Mass General on his article of C diff.

    Good luck!

    Reply
  96. Rex

    Hi my wife has been sick for a while first went to dr for bronchial infection given antibiotics took two days worth and became very sick with diarrhea went back to dr was told it was the stomach flu and put on another round of antibiotic. Finished the 10 days worth thought she was getting better two days later we were back at the dr with stomach issues. Went to lab did stool sample because her white blood count was 22,000 tested positive for c-diff. Dr said as long as we kept fluids in her she could stay home and not go to hospital, we were not told how contagious it is should we be worried?

    Reply
  97. Lisa Healy

    Hi,

    I have a question about licensing content from this site for an app I am working on. Please contact me at my email to discuss in detail.

    Thank you.

    Reply
  98. Lauren

    I have a dear friend whom I truly care about and love, and all of a sudden, he was taken down w/ “a flue”, of which, I too, had. But mine was fever, throat, ear infection, bronchitis, NOT GASTRO…..mine was treated w/triple antibiotic otic solution for ear (as 2ndhand smoke from working as FltAttdt has left me w/perforated eardrum)& I had allergies from 1st anitbiotic, which was 500 mg AMOX-CLAV taken down to 250mg AZITHROMYCIN 6PACK, point being I beat this “flue”, but my friend just sent me an email stating he has been in hospital (after receiving 5 bags of IV solution for gastrointestinal “flue, on 12/07/11), and NOW tells me he almost lost his life and has been in hospital until 1/13/12 with C-Diff & is still not back @ work. His work involves travel (which he had just come back from), works in the “field” as Homicide Detective, teacher, etc. Question is this: I did get sick, but I am over it, he apparently gave me some sort of illness as I know airborne germs very well travel around airplanes, but I READ that only 2-5% of population get C-Diff…..IS IT CONTAGIOUS? HOW CAN I HELP HIM? I am a former RN, have worked in all types of medical environments, am now disabled and generally do not work out in field anymore due to spinal problems. I am not sick, so is this something HE got from air, work, bad luck??? And, he was working 24/7 on call for this type of work….he was very dehydrated and always tired. Seeing that I want to help him, want to make sure that what/if I do is correct, and also do not want to spread it or get it myself. WHAT SHOULD I DO TO HELP? IS THERE ANYTHING I CAN DO? Thank you so very much for your time and interest. God bless you with only the good things that life has. 🙂

    Reply
    1. admin Post author

      Unless you have a test to establish that you have had C Diff it is unlikely that he gave it to you. C Diff is contagious but this tends to happen during the stage when the patient has very bad diarrhea. He needs expert medical help for the c diff condition and like us all some general TLC for the recovery period.

      Dave
      cdifficile.org

      Reply
  99. gbren214

    I work at a hospital in environmental services. Last night I cleaned a c – diff room without proper signage and didn’t wear my ppe or clean with the correct cleaner. I re did the room after I found out but I was already exposed. I am currently on ciproflaxin 500mg twice a day due to bronchitis. Am I at a greater risk?

    Reply
    1. admin Post author

      Technically yes. Those on antibiotics are most prone to moving from being a carrier to being infected.

      Dave
      cdifficile.org

      Reply
  100. Dawn

    I have had diarrhea for a couple weeks now, but I was in the hospital and on very stron antibiotics. I have been taking acidophilus and just started taking an anti-diarrheal. I don’t have any other symptoms, ie. fever cramps etc. Should I be concerned?

    Reply
  101. admin Post author

    You will need to get expert medical advice re repeat cultures. We are an information site about general C Diff issues

    Sorry we cannot be more helpful

    Dave
    cdifficile.org

    Reply
  102. eanmee

    After antibiotic how many days or hours wait for repeat culture?
    How many time do we need for culture for safety?

    Reply
  103. Shondell Palmer

    My baby has a permante feeding tube and has c-diff three times he is only a yr old i was wondering if something else was going on with him the drs are missing he has bloody poops too has been tested for intrususseption and it was negative I am at a loss but scared of the side effects of flagel what else can i do he is also on a acidofalis to please someone help me hes been threw so much in his life I need an answer

    Reply
    1. admin Post author

      Dear Shondell

      We limit ourselves to advice of a general nature about c diff here on the site. I am so sorry to hear about your situation. Have you asked your doctors about Fidaxomicin as this often stops c difficile from coming back.

      Dave
      cdifficile.org

      Reply
    2. Maryann

      My baby had c diff at 5 months which triggered flies type reaction to rice, milk,soy and other foods. Nnwe had him on flagyl or 2 months. Cdiff went away. Then came back x3, He was.Hospitalized a few times. He is now 1 yr old. I started. Culturelle and we do neonate nutra. And neonate. And what a difference. I know your struggle—good luck. I also make all food and use organic

      Reply
  104. Patti

    Does C Diff respond to Oredano Oil? It is extremely pathogenic and not a drug. ( in a negative fashion, for sure!)
    Thanks for your time.

    Reply
  105. Monique L

    We had a family member who was ill sstaying with us for a week. What type of cleaning do we need to do? And this person was petting our dogs and let one of the dogs up in his lap, what type of percautions do we need to take with them (I.e. baths)?

    Reply
    1. admin Post author

      Many people are colonized with C difficile and do not suffer any illness unless they are on medication for several days or weeks. C Diff spores are very hard to get rid off if the person was an active shedder when they were with you. Given that they were mobile most of the shedding would be via their hands. Clean high touch surfaces with strong bleach and clean the animals with conventional washing. Do not worry too much – you are unlikely to suffer a c diff episode unless you are already ill with something else.

      Dave
      Cdifficile.org

      Reply

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