Why do some people have recurrent C Diff infections?

Recurrent C Diff – What are the causes? This is an area where research is ongoing, but here are some of the possible reasons.

New infection from a new source

They have been reinfected through another hospital contact and a cycle of sickness has started again.

Recurrent c diff – the drugs calmed it rather than killing it

The drugs previously given subdued it but did not kill it. There is some evidence that some bacteria will ‘switch off’ and go dormant in their fight against vancocin. When the balance of the intestine is disturbed again by drug treatment for another illness the latent c diff is re-activated. A new but expensive drug called Dificid kills the c difficile bacteria and is linked to low to non existent return of c diff in treated patients.

You were reinfected again in the community

Little is known about the general prevelance of c difficile in the environment and community. Figures of 3-35% who might be ‘silent carriers’ are sometimes mentioned in the scientific literature. There is also a growing body of evidence that some are suffering c difficile infections without hospital contact. The possibility of community spread cannot be ruled out.

What is the solution?

The intestine can sometimes be so disturbed by drug treatment, infection and illness that it struggles to get right. The fecal transplant method now being explored in many hospitals does suggest that healthier fecal matter can restore the intestine to balance and break the cycle of illness. Find out more 

There are also some studies that suggest that people suffering from other intestinal complaints will be more vulnerable to repeat infections. Their medications may be a factor as may other changes in the gut bacteria with respect to the other condition.

More on C Difficile Treatment

Recent Chronic C Diff news

87 thoughts on “Why do some people have recurrent C Diff infections?

  1. Amy

    My son was 9 months when he got c-diff, and after 2.5 months of constant doctor visits and tests he was finally diagnosed with C-Diff. He’s been on Vanco pretty consistently since September. We were able to knock it down end of October 2015 and then got Croup and an antibiotic which brought the C-diff back. We did 1 10-day round of Vanco followed by a 1 month titration that ended 1/23/16. Tests today were positive for C-diff again. Trying to get into Mayo Clinic in MN for the fecal transplant in the mean time for him…but loosing my mind with a miserable 15 month old. He gets the Florajen 4 Kids probiotics twice daily while on the medication and we just can’t seem to kick this.

    Reply
    1. Infection Watch

      Have you considered Dificid or Flaygl/Vancomycin – ask your doctor. These are often effective against chronic c diff

      Dave
      cdifficile.org

      Reply
  2. Nicole

    My boyfriend had pancreatitis and got c diff while in hospital so was treated for like almost 2 weeks and thought it was his appendix but c diff again. I know u can have recurrent symptoms that it never leaves but are u always hospitalized for this? When does it stop? He’s on vanco and had to go back into hospital after being treated almost 2 months ago and again a week ago?

    Reply
    1. Infection Watch

      Vanco does not have a stellar reputation in stopping the hardier versions of c diff. Some hospitals use vanco/flagyl combo and other go for Dificid which has a stronger reputation for actually stopping chronic c diff but is more expensive.

      Dave Roberts
      cdifficile.org

      Reply
  3. Elizabeth

    I would like to email or Facebook my mother this article but you only offer “twitter”, “google” and “redddit”. I’m not proficient with a social media and could use some help. My mother has suffered from 4 c-diff infections since 6-4-14 while being hospitalized over 12 time following a knee surgery that started this reoccurring condition. She underwent a fecal transplant in September, 2014 but the c-diff returned when doing a miralax prep for a follow-up colonoscopy to remove a large polyp that was discovered during the fecal transplant. C-diff then reared its ugly head again this January 2015 after being hospitalized due to an abscess involving a diverticulitis pocket rupture. Thank you for you consideration to add an “email” or “facebook” option. Sincerely Elizabeth

    Reply
  4. Rhonda Howell

    My 22 year old daughter has been battling C-diff for nine months. She was hospitalized at one point for it. We have no idea why it keeps coming back, but she stays wiped out with no energy. Is there anything we can do other than the medications that she takes when it recurs to prevent this? I am very worried. She is adamantly against a fecal transplant and after seeing where it hasn’t really worked on people on here I am wondering if it is worth it to even try. Any advice you can give is appreciated.

    Reply
      1. Debby Gallup

        I suffered with C Diff for 2 years, 11 recurrences. I had all the meds for C Diff, Flagyl, Vancomycin and Dificid. It’s been a year since my fecal transplant and it has not come back!! I would not hesitate to have another one if needed, the next day I felt so much better and have been C Diff free since. Debby

        Reply
    1. Garnet Oltmann

      It appears you need to seek another doctor/doctors. The disease KILLS people. I almost died from it. Dificid is a great drug. I was in the hospital for 30 days and this is the only drug that took care of my problem. That was 4 years ago and I have not had a problem since then. Please go to another doctor/doctors until you find one that will take care of the problem. Your daughter is too young to have to live with this. After what I went though I would not have a problem with the fecal procedure. I am 71 years old. Not a problem for me after spending 30 days in hospital in another state. Trust me, c-diff is NOT something you want to let go on without treatment.

      Good Luck.

      Reply
  5. Debby

    I have been fighting C-Diff for 2 years now. I contracted it during a hospital visit for a partial small bowel obstruction. The doctor working the ER that decided I needed multiply bags of I.V. antibiotics and it stripped my colon of all the good bacteria.I have been on Flagyl twice and vancomycin 8 times. I have two fecal transplants and they are scheduling for my .3rd transplant right now. This has changed my entire lifc, I lost my job, & freedom to be able to leave my home for the fear of having accidents out in public I hope and pray this 3rd transplant works. So tired of being sick#!!”

    Reply
  6. Tim

    I am on vanco – second round, flagyl (sp) first time – back in July. When it came back, I ended up in he ER, then a five day stay in the hospital. Now I’m tapering to 2 liquid doses a day, every other day, and symptoms are coming back… fatigue, loss of appetite, frequent bathroom breaks, no D yet, but all the other signs are pointing to a come-back – any suggestions?

    Reply
  7. Linda

    Hi Garnet,
    I’m just me, maybe different than others. everyone is different.
    Thank you for saying I’m a remarkable person for caring for my family through difficult times. Yes It was very difficult, but don’t regret a moment of putting my life aside to be there for them. That is how I am, while others go on with their life not to be stuck dealing with helping the elderly. I seen so much in the Nursing home of neglect, no family going see them. I adopted many. Helped at the feeding table for those that needed help to eat, the aids could not keep up, many went unfed. Then I had to help my own Mom to eat, I had to tell her One Bite for You One Bite for Me, That was the only way I could get her to eat just Jell-O, anything. Never thinking I will catch anything.
    I smiled and brighten their day, But cry when I left on my way home.
    I promised so many I’ll come back to see them when Mom passed away, ashamed to say I could not get myself to go back. Too many Bad memories, I heard most of them passed away. New one fill their spot.
    How many of them had c.diff ?????

    Garnet
    You are remarkable also, all what you been through, Your a strong survivor. and having a positive attitude, help me, and many others. Every time I feel stress build, I think of what you said. Take it one day at a time. We will be ok.

    I’m so glad I found this site, so many personal information shared because we all need support and all understand we are not alone. You can’t talk to just anyone that don’t understand, and never been through it.

    Take care,
    Linda

    Reply
  8. Linda

    Hi Dave,
    I’m 57, 5/3.I always tried to stay healthy, Work out Instructor. I was finally diagnosed wit c.diff two days ago 8/29/13 from a GI Specialist.
    scheduled for scope, but was cancelled when stole came back positive with C.Diff. My G I. Dr. put me on Align Probiotic supplement 4 mg capsule & Ciprofloxacin 500 mg 3 times a day, I’m worried, didn’t know what this was. research only made me more concern. I’ve always thought it was nerves, I.B. due to stress. I have taken care of all elderly in my family. First grand Mother I stayed in the hospital day and night for 3 months till she passed away with strokes. Drained and depressed bad. Two Years Later I took in my other grandmother for 2 years.
    first time bad cramp, blood in stool. I was told it was stress and nerves. I was full time taking care of my other grand Mother here at my home, she passed away at age 102, from cancer in 1995. In and out Hospitals helping others elderly’s as well. I put my heath aside and kept going. My Husband works In Africa, I always have stress.
    My Mother had to be placed in a nursing home facility with many medical issue. Since I could not handle her at home, I stayed at the home daily from day till night with her. she died of kidney failure from Diabetes After one year. I put on the gloves and help made sure she was clean, from diarrhea. She was very over weight and one person could not do it alone. I was ill on and off, fatigue, always thinking it was stress, nerves, & depression. Then I had severe pains and passing blood for three days, went to the emergency room they just said it was Food poison bacteria and dehydration, put me on Antibiotic’s and sent me home. started feeling better, then relapse two weeks later with fever 102, pains and blood in stool. that is when I went see a G I specialist 8/29/13. My question is, could I have caught C.diff from years back, not knowing I had it till this severe attack confirmed I have it ? Can I infect my kids and grandkids ? Clorox cleaning things, still concern. I go back to the G. I. Dr. for a follow up on 9/3/13.
    weak, no appetite, Trying to drink plenty of Gatorade, and so for crackers, soup. Please help with any further advise.
    Will I suffer with this for life ?

    Reply
    1. admin Post author

      You may find that your current treatment clears it up for you. There are also other drugs which may be effective if this initial treatment fails. You can infect others but studies suggest that family infection among regular hand washers is rare. They may also not develop an active infection even if they become carriers.

      Keep in touch with your GI specialist

      Dave
      cdifficile.org

      Reply
      1. Garnet Oltmann

        Linda

        I am so sorry to hear about all that you have been through with caring for your family members. While on Christmas holiday several years ago, I was hospitalized and tests revealed I had full blown cdiff. Stayed in the hospital for 28 days. Lost 18 lbs. I had to be flown home on I.C.U. jet as I was not allowed to fly home on commercial plane or travel in private care. You really need to stay on top of this with your GI doctor. My GI doctor didn’t want to retest me after I arrived home. Went to another doctor and told him my story. He ordered test and I tested positive for cdiff. Had to go on very expensive meds. $3200. for 10 day treatment.( Mfg.gave me meds, as I couldn’t afford them.) It worked,that was 1 1/2 yrs, ago. You need to stay in contact with your doctor on a regular basis. Ask questions and ask to be tested on a regular basis. Make sure to wash your hands and when using public restrooms make sure to take santi-wipes with you. You are going to be okay!!!! Good luck and take of yourself.

        Reply
        1. Linda

          Dave,
          Thank You for replying to my post. I defiantly will follow this up with my G.I. Dr. I’m worried for future flair ups, and infecting my family and friends. I always washed my hands, sanitize in fear of germs and Bacteria. I still don’t know how I have contracted this myself ? Or how long have I had this ! So far the Medication my G.I. gave me has me felling better for now. But I still have to go through the scope and Ask many Questions, and follow up on this. I know this is serious not to ignore it. My mind don’t stop, thinking, nursing Homes, Hospitals, ect. I took care of so many, now I am at risk to Myself, my own kids and grandkids.
          I have been sanitizing everything down in my home, car, and phone with Clorox Bleach, hoping to ride this bacteria.
          Dave, I have two Little Yorkie’s, can they contract this from me ?
          Again thank you, I’ll follow up with you as well, you help answer Questions for me for something’s I never knew.
          Best Regards
          Linda

          Reply
          1. admin Post author

            C Difficile is not unknown in dogs but it is not always human transmitted and it can be caught from the natural environment. Many people and animals may carry C Diff without effect until their intestine is disrupted by antibiotics. You dogs may never catch it. If they do they may never have an active infection.

            Hand washing after toilet visits is the best ‘barrier to spread’. Also always flush the toilet with the lid down. This prevents contamination around the toilet area

            Hope this helps

            Dave Roberts
            cdifficile.org

          2. Linda

            Dave,

            Thank you for replying to information on my little dogs. I have relief with all advise you can answer for me until I can ask my G.I. Dr.
            So far I’m feeling ok while still on the medication. Never heard of this before, and found out how serious it can be. I hope once off the medication I don’t have another flare up. This drains you down very much. you and others help me understand c.diff. with helpful answers. I know I’m not finish yet, until I go through the scoop and see what the results show. I’ll keep in touch with results that may help others, as reading others post and answers you advise them with d.ciff have help me. Glad I found this site where I was able to get answers to better understand c.diff.
            Toilet led will be down for now on.
            Thank you, Dave
            Linda

        2. Linda

          Hi Garnet,
          I’m sorry to hear how bad you suffer with full Blown c.diff. To be in the hospital for 28 days during the Holidays I can imagine how hard that was. Being away from home and having to fly on I.C.U. Plane. sounds like you had a very rough time.I can’t believe Medication cost $ 3200. Glad to hear you got it from ( Mfg) and you are doing better.
          Do you know how you got c.diff ? Did you have symptoms before you were Hospitalize ? I will follow up regular with my Dr. This was a shock when they called with results from Lab results from stool sample, Still need to go through the Scoop test and ask many questions. I was always concern on Bacteria, did not eat out much because of germs & bacteria. This has pulled me down, My normal weight is about 115, down to 112. Trying to drink plenty of Gatorade, and getting an appetite back. so I know 28 days in the hospital, & loosing 18 lbs, you had a rough time. . I have been cleaning everything with Clorox bleach, and sanitizing my hands constantly. Hope you continue to stay well, I know the pain and suffering you went through. Hope you stay well, Thank you for any information about c.diff.
          Thank you Garnet,
          Linda

          Reply
          1. Garnet Oltmann

            Hi Linda

            I had most of my colon removed a year earlier which involved two operations which once again I was in the hospital for a month. I was told that they believe my cdiff was the result on being on so many antibotics during that hospital stay. I understand cdiff can lay dormant for some time and then one day “appear”. No, I had NO symptoms!!!
            On Christmas holiday became weak and developed SEVERE diarrhea. Family took me to hospital on 12/27. I remember going to ER, however, no memory after that until 1/19. I have 25 bowel movements 1 hour. I was in the bed for over 20 days. I feel I am lucky to be alive. After I returned home I went to rehab for 10 days.

            Linda, I truly understand your concern. However, please do not worry yourself to death about this. Listen to your doctor, know the symptoms and do not hesitate to call your doctor if you have concerns. Like I said, insist on regular cdiff testing. Drs. in Asheville, NC told my family I should be tested on a regular basis for several months. My GI did not want to do so. I simply went to another one of my doctors and got the test. You need to do the same. Find a doctor that will listen to you. I understand your concern. I too, at the beginning was concerned about getting cdiff again, Realized I had allowed my fear to take over my life. Decided I wanted to get on with my life. You can do the same. Look up diet for cdiff, think it is called Brat’s diet. I promise you, you are going to be okay!! If you need to talk with me, let me know and I will give my phone number to you. Maybe Dave can help us with this.

            Garnet

            Take one day at a time, you are going to recover.

            Garnet

          2. Linda

            Hi Garnet,
            You Very Lucky to be alive after all you been through.
            Thank you for being a positive supporter with results of c.diff,
            I understand you been through a lot, having most of your colon removed. Was that from damage results of c.diff ? In and out of Hospitals for long stays. you must have been very dehydrated with 25 bowls movements in an hour. I know being that Ill and weak took
            Rehab to regain your strength. If anyone knows how this can affect a person sounds like you been through a rough time and know.Your a fighter and didn’t give up. I am letting this consume me with fear.
            I know I still have the scope to go through. I’ll ask to be check on a regular base.
            I still don’t know what stage my c.diff is in. Guess my G.I. Dr. will answer a lot of questions. I know I’ll be asking a lot, hope I don’t drive him crazy, lol.
            Do you have to take Probiotics to stay in check ? I’ll look up the diet you sent me, thank you, because I was concern what to eat and what not to eat. I seem to can’t stop wiping things down with Clorox, l don’t want my family to be scared to come around me, My mind is consume on one thing, washing hands often, Sheets washed with Clorox. Everything I touch.
            I have two spoiled little Yorky is it possible I could give it to them ?

            Garnet, I will try to do as you say and have a positive out look with this. After all you been through, your getting on with your life. I hope my fears don’t consume me as it has. I’m glad to have heard your rough time and how you pulled through this, you have a positive attitude to get on with life, You give me positive courage to hold to.
            I have not been out the house since I went to the Dr. and was the told the results, research made me fear the worst. My sister is always calling, she too is helping me research this, memories go back to taking care of grandma, & Mom. then we talk of other things and I find myself Laughing again. Slept a little better last night too.

            At first I was not going to post anything, But you have made me relax a little more, When you said I’ll be ok. If anyone should know I think you been through so much that you know and give hope, and peace of mind. Thank You Garnet, for being so positive, you could be a mentor for people. If You think of anything else let me know. I’ll keep in touch as I get more results.
            Linda

          3. Garnet Oltmann

            Linda

            I was told I contacted cdiff from all the antibotics I took while I was in the hospital with colon surgery. It appears that taking TOO many antibotics kills the “good” bacteria in your gut, that leaving the “bad” bacteria to take hold and brings on cdiff.

            Yes, I take two probiotics daily. Refrigerated P. are better I am told by my doctor and health food store. They come in many strengths. Ask health food manager what strength you should take. You need to tell them about cdiff. On another note, my GI and surgeon never mentioned taking probiotics, my primary doctor made the suggestion.

            You can over do washing your hands and bleaching everything. Your condition is not serious or you would be in the hospital. Please get out of your house and try to return to your normal routine.
            Write down all your questions before your doctor visit let him know you are “on top of it”. You have done your homework and he needs to answer ALL your questions.

            What I am sharing with you is what helped me. I am not a doctor and you need to rely on you GI doctor and maybe you need to go and get a second opinion. Simply sign a form releasing your medical info to another doctor. They will forward all test results and etc. I learned the hard way, you don’t have to.

            When I returned home it took me a year to get up the courage to ask my doctor why he did not test me for cdiff before I left for NC. I was told I did not have any sypmotoms and they did not “smell” cdiff when I came in for my appt. the DAY I left for NC. 6 days later, I was in the hospital…………go figure that????

            Don’t be afraid of doctors, they are just human and they DO make mistakes. However, we have to rely of them as they have dedicated their lives to helping others.

            Linda, go about your everyday routine. Don” go overboard with anxiety as they can add to your health issues. Try to get hold of your fear and etc.

            You are going to be okay. FYI, the medication I took was Diciff. That is suppose to be a very powerful drug. It took care of my issues. IF I have to have surgery, they will put me on diciff BEFORE surgery as I will probably have to be put on antibotics……….which is what caused my problem

            Wishing you the best. Keep me posted on your progress.

            Garnet

          4. Linda

            Garnet,

            All the advice you gave me is very helpful. Getting information from someone who has had c.diff helps. I realize yours was a lot worst. You was hospitalize for 28 days.I would have never thought to much Antibiotics could cause this. I have not been on Antibiotics in the last 6 months or so. maybe it was just dormant ? I know I still have to do the scope test, maybe then he can tell me more on why I was had high fever and passing Blood not diarrhea. I’ll write the questions down to ask him. I’m calming down now, yes stressing over it will not help. I got out today and going on with my normal routine, feeling better so far. I will keep a positive out look on this. Things you help me to learn about it is greatly appreciated.

            Garnet I will talk with both my primary Dr. and G.I. Dr., yes they are human and make mistakes, and do dedicate their lives helping others. When you got the courage to ask your Dr. why he did not test you, and his reply was you didn’t have any symptoms and they didn’t “smell ” c.diff ????? But you end up 6 days later in hospital.

            I will take it one day at a time, I will finish the Medication and see what results the colon scope shows. I did get very concern about the what if. That you understood. After hearing all what you went through and you say your doing ok, and I’ll be ok.

            I’m an Artist, I have stop with my Art to take care of Mom in the Nursing Home. When I lost my Grandmothers and Mom, I fell into a depression. Hard to help our love ones die in your arms. After two years I decided to get back into my Art, I had an attack of c.diff. Now to pick up where I was and take my Gift and do Oil Paintings again.

            Garnet hope you stay well, and thank you for the support you gave me. I will keep you posted as I hope you keep me posted also.

            I also wish you the best.
            Linda

          5. Garnet Oltmann

            Linda

            You are a remarkable person caring for you family through difficult times. I can’t imagine the pain and depression you have had to deal with. I am so glad you are back to your art !!

            HOLD ON, good news is coming your way soon. I am waiting to hear from you.

            Wishing you the VERY best.

            Garnet

          6. Linda

            Thanks Dave,

            For being the bridge for phone numbers. I would not just post it on an open site. I’ll e-mail you if I need any personal information.

            Dave is it normal to feel great one day and then feel fatigue, the next day, I had this before I was diagnosed c.diff., told my Regular Dr. many times I feel fatigue,cold. General Lab always came back normal. could it be some other issue. I called my G.I. Office, waiting for a return call ?

            Linda

          7. admin Post author

            Re fatigue – we have in depth C diff knowledge but are only medical journalists so would be speaking outside of what we have have read and studied.

            Hope you find some answers

            Dave

  9. Pat

    I have had 3 bouts with C-diff – one worse than the last one. I had a knee replacement prior to the last bout and came down with it 3 days after I came home from surgery. All seems to be going well now. My last bout with in August, 2012. My question is Since I had C-diff the last time I have had this gnawing sensation in my stomach and can’t seem to get rid of it. Is there anything I can eat or take to get rid of this. Food seems to help but I have gained about 6 pounds and I don’t want to continue on this road. Any help would be appreciated..

    Reply
    1. admin Post author

      You need proper medical advice but it may be acid reflux which is not uncommon. The drugs for it provoke C Diff reactions however. The gnawing sensation may be the lesser of two evils

      Dave
      cdifficile.org

      Reply
  10. amber

    hi i have had c diff for about 5 months now. it has been the longest 5 months of my life. i have been on a course of flagyl for 14 days, that did not clear it up. they waited a period of 2 weeks or so to retest and i was positive again. they tried to prescribe me vanco but i do not have prescription coverage and could not get it. the diffcid manufacturer sent me a supply of diffcid for no charge. i took that for 10 days waited to retest again. Again the test came back positive. i was experiencing a large amount of pain in my lower abdomen they took me in for xray and bloodwork to make sure nothing perforated, everything was okay. i was told to go to er. i did, and they said they couldn’t admit me beacuse my blood test numbers were low but not low enough. they sent me home with another prescription for flagyl, that did not work the first time. i have had constant diarrhea throughout htis entire time, anything i eat goes right through me and gives me horrible stomach pains. i’m scared to eat becuase of these pains and trips to the bathroom. My hair has begun to fall out, and i have experienced weight loss. i am at my wits end. Where can i turn? i just want to feel better, this has been going on for so long now, i am desperate, and scared. i have read that this can be fatal, and cause other serious problems. i am hoping to hear back from you with any insight that you may have. thank you in advance for your time.

    Reply
    1. Infection Watch

      It is rare for Dificid not to help halt the infection. You may want to google fecal transplant and the name of your state or city. His will stop it in most cases within 24 hours

      Dave
      Cdifficile.org

      Reply
  11. Tammee

    I contracted C-Diff from hospital during surgery this year. I’ve been very sick and Vancomycin was the last resort treatment. I was treated at home. It has been 6 weeks and I am still suffering. What else can I do to help myself?

    Reply
  12. Sonny Brown

    My 30 year old daughter was diagnosed with C diff 10 years ago. I’m not sure what she was treated with. But since that time she has had bouts of severe diarahha off and on throughout the past decade. She has had all the routine test
    Colonoscopy, endoscosy, biopsy…. but has never been retested for C diff. (I only just read about this in USA Today last week and it sparked my attention.) So… now I’m wondering if she has additional bouts of C diff., but it is too complex a case for our local (we live in rural, small town) to uncover. Can you recommend the leading hospitals or experts we might see? I’m ready to do ANYTHING to help her… it has really stopped her life in many ways. Thank you so much for this helpful site! Sonny

    Reply
    1. admin Post author

      Use the search box on our site to look for mentions of your state. this may throw up some good treatment centres. Let me know if this doesn’t show up a suitable match

      Dave
      cdifficile.org

      Reply
  13. Carol

    Hello. I am an otherwise healthy 44 year-old woman. I came down with C diff about 3 months ago and I have no idea from where. It cleared up after a round of flagyl. Now I feel that it may be coming back. I started having mucus in my stool for the past week. Then last night my stomach started feeling “funny”. It feels just like it had in the 2 weeks before the diarrhea started 3 months ago. Can they test for C diff without the diarrhea being there yet? I feel like a ticking time bomb just waiting for it to start again. Thank you!

    Reply
    1. admin Post author

      It may have come back but only a test will indicate – they can do this whether you have diarrhea or not. It will probably test positive but there is a threshold where the c diff is not merely present but active. You may need a stronger drug.

      Dave
      cdifficile.org

      Reply
  14. Nina

    Hi I had cdiff for 4 weeks, was treated with Vanco for 14 days, I finished it 4 days ago, now I got UTI, and my doc wants me to take cipro for 3 days!!!! I am so afraid of cdiff coming right back! Should I take it or hold off for few more days, try something else….? Thanks

    Reply
    1. admin Post author

      Was the doctor aware of the the c diff. Is it the same one? We would not encourage you to self medicate re the UTI and ignore his/her advice. You may need to go back and ask some questions.

      There are also different strains of C Diff. If you have had a milder one they may feel that the Vanco will have done the trick

      Dave
      cdifficile.org

      Reply
  15. unlucky

    Well i guess now the doctor is saying or calling this my third relapse with cdiff since january ..i got out of the hospital minus my large bowel in feb…And i was on a ten day treatment in march and again in may with vancomycin. Now they did a biopsy and a scope which showed nothing….just inflamation but my understanding is a scope does not show cdiff . Does anyone know if this is correct? I am now on vancomycin via enemias for the summer . I am scheduled to be put back together after the summer is over and i am very worried the cdiff will take off again since it almost killed me the first time….

    Reply
    1. admin Post author

      The scope is likely to show the damage being done by c diff, including inflammation. Only a test can confirm that c diff is the cause. Ask them about fidaxomicin as this seems better at stopping c diff coming back.

      Dave
      cdifficile.org

      Reply
      1. unlucky

        thank you i will ask them. The scope showed imflamation. And by test do you mean test on the stuff i am passing?
        Also is there any means of getting good bacteria levels back up in my bowel and system before going in for a reattachment surgery in two months? this is what i am afraid of the most that when they go to reattach the cdiff takes off and this time finishes the job and kills me. It almost did the first time.

        Reply
        1. admin Post author

          Yes – they will need to test the fecal matter. Given that you are having surgery again the use of fidaxomicin to clear your current infection if it is proved to be c diff by a test would help stabilise you before the next surgery.

          You may also find this helpful

          This from the http://www.uptodate.com/contents/patient-information-antibiotic-associated-diarrhea-clostridium-difficile site may help

          Diet — There is no particular food or group of foods that is best for a person with diarrhea. However, adequate nutrition is important during an episode of acute diarrhea. For patients without an appetite, it is acceptable to consume only liquids for a short period of time. Boiled starches and cereals (eg, potatoes, noodles, rice, wheat, and oats) with salt are recommended for people with watery diarrhea; crackers, bananas, soup, and boiled vegetables may also be eaten.

          A temporary type of lactose intolerance is common following diarrheal illness; this may last for several weeks to months. Thus, temporary avoidance of lactose-containing foods (eg, ice cream, milk and milk products) may be helpful.

          Dave
          cdifficile.org

          Reply
  16. Gayl

    I am 29 and in pretty good health overall. I was diagnosed with c diff after having my meds changed ftom arythromican to clyndomician for strep that wasn’t going away. I just finished my 10 day prescription of metronidazole on Saturday and by Sunday afternoon I started having symptoms again. Much milder symptoms than before with no fever a milder stomach pain and no diarrhea. I am however making increasingly more frequent trips to the bathroom with more tissue and blood in my stool than my first bout with c diff. This worries we and I wonder if I should wait until my dr can see me, or head straight to the er?

    Reply
    1. admin Post author

      We cannot give medical advice, only information. We would suggest however that you seek help now. Blood discharges are never a good sign

      Dave
      cdifficile.org

      Reply
  17. Jane Perry

    This reply is for Tamara. I did test positive for Cdiff 3 times. One mistake that I (and my doctor) made was testing right after a round of 4 weeks on flagyl. I tested negative then and we thought I was out of the woods. However about 10 days later I relapsed. If you do not have symptoms then the Cdiff is hibernating — so don’t waste your time, money and dignity on the test unless you have symptoms.

    I did find that when I relapsed the occurance was not as harsh as previous episodes.

    A comment on vancomyacin — I had to pay $1680 for a two week course — I have no prescription coverage. After I relapsed again I found out that you can get a liquid form of vancomyacin from a compounding pharmacy. That cost me $133 for a two week course. Do the math.

    Once more thing — you should be taking probiotics. I was told by a pharmacist that the specific culture to get is Saccharomyces boulardii.

    Reply
    1. Tamera

      Thank you for the information Jane. I have the Saccharomyces boulardi but am not taking it because I want to speak with my primary MD and chiropractor. I used to get yeast infections and thrush a lot, and there is a slight risk factor for fungemia for some people who take Saccharomyces boulardi. Have you heard about this? I am very pleased with the response my body has to Flora and kefir, but if neither of those actually rid the body of the c.diff bacteria, I’d hate to think the c.diff is just hibernating. Is there no natural way to overcome it?

      Reply
  18. Rosette shumacher

    My 21/2 yr old grandson was diagnosed with CDif he is on round number three of medication he has lost too much weight and is now only 20 lbs I am very concerned that maybe his gastro Dr. Is not treating him correctly iis there a top specialist in the New York area that you can recommend? His diareah is completely watery even though he is on medication this is freaking me out. I can literally see he is all bones Any information would be greatly appreciated
    Rose

    Reply
    1. admin Post author

      We are based in Europe so are not aware of key doctors in the USA. What medication is he on

      Dave
      cdifficile.org

      Reply
  19. Tamera

    I got c.diff about 15 years ago while taking an antibiotic for a sinus infection and was prescribed Flagyl. The Flagyl made the c.diff worse, so the doctor told me to stop all medications. After 3 weeks of bed rest and losing 10 pounds, I seemed to come back to health (I was young and healthier). Two months ago I had an endoscopy for recurrent reflux and stomach pain. Turns out I have acute Gastritis and was prescribed Prilosec 20mg daily. 10 days ago my stomach began hurting and the battle with c.diff begins again. My GI doc told me to stop the Prilosec, but doesn’t seem concerned about the diahrrea and cramping. I am concerned because I have pain under my ribs and in my sides- I don’t remember experiencing this in the past. Is this normal with c.diff? If it turns out I am a carrier, will I ALWAYS have c.diff? Thank you for your thoughts on the subject.

    Reply
    1. admin Post author

      The new drug, Dificid, seems to have a much better track record at halting C Diff rather than just suppressing it. Has the doctor confirmed your recent situation with a test?

      Dave
      cdifficile.org

      Reply
      1. Tamera

        I have never been given an official test for C Diff, but when I was prescribed the Flagyl years ago, the advice nurse told me that’s what I had. As a follow up to the recent bout- I went on the BRAT style diet for two weeks (my main diet was yogurt, rice, poached eggs, grilled plain chicken (organic), saltine crackers, boiled asparagus and carrots, chicken noodle soup, bananas and Kefir). After about 10 days I added Flora (super acidophilus), and I must say it has made a monumental difference. I have normal BM’s now (for the first time in 2 years!), but I do still feel inflammation in my stomach and intestines. My acid reflux has been reduced so dramatically I’m astonished. However, I definitely still have inflammation and hope to get a CT scan of my intestines at some point. If the symptoms of my C Diff have subsided, do you think it wise to request a test for C Diff at this point? I am wondering about the “colonization” factor, and which test would be adequate for a proper diagnosis at this point. Thank you for your time.

        Reply
        1. admin Post author

          You really need a test to confirm without a doubt that it is c diff causing your problems. Without that there are no definitive answers

          dave
          cdifficile.org

          Reply
          1. Tamera

            Is there any way to naturally rid the body of the c.diff through diet and supplements?

  20. Robyn

    I was hospitalized 3 months ago for diverticulitis and put on flagyl and augmentin after getting out for 10 days. After a week of not feeling much better, my doctor prescribed another round of flagyl and cipro for 10 days. Things seemed to clear up for the most part, however, a month later I felt like I had another flare up and the doctor gave me another 10 day round of flagyl and cipro. Still not feeling well after that, my doctor gave me yet another round of flagyl and cipro. About halfway through that round I had a CT that said I had mild diverticulosys with no sign of diverticulitis or abcis. I then had a bad reaction to the contrast from the CT and passed a kidney stone two days later. I then went and saw a new doctor who did a full blood, urine, and stool tests and come to find out that I had c. diff. My new doctor assumes it is from taking too much antibiotics and not enough probiotics. He put me on vancomyicin for 10 days, and about halfway through I started feeling much better. I have now been off for a week and my diarrhea is feeling more loose (not watery), and getting mild cramping on and off throughout the day.
    My question is how long should I have diarrhea after getting off vancomyicin? Is this normal?

    Reply
    1. admin Post author

      Vanco is the second drug when Flaygl fails. But Dificid is thought to be the one that halts c diff rather than just dampening it down.

      dave
      cdifficile.org

      Reply
  21. Sara

    For the past 7 months, once a month for a 24 hour time period, I have had horrible watery diarrhea where I go nearly every 30 minutes to an hour. I have no appetite and can barely drink anything because everything just goes straight through me. But then, the next day I’m perfectly fine. Could this be a side effect from my birth control that I take, because the past 2 months it happened on the EXACT day 3 days after I started my new pack. But I have been on this pill for 1 year now and I wasn’t effected the other 5 months. Could this be C diff or something else?

    Reply
  22. george

    I been diagnosed with c diff it was a very long painful four days of being in the er treated for other things and discharged before my Dr saw me and tested me thank god .my question is I been having the painful non stop diarrhea and vomiting I started flagyl and although I’m extremely happy not to be living in the bathroom my concern is I haven’t had a bm in 2 days of any kind and my belly when I eat feels like I ate rocks should I be concerned or is everything trying to right itself Ty

    Reply
  23. Garnet Oltmann

    I had cdiff and was hospitalized for 28 days. Had to be transported home from NC to FL via ICU Jet. Went to rehab center for two weeks and left with a negative test for cdiff. Tested positive after a few weeks. Have taken dificid for ten days. Was lucky to get this drug for no charge. ($3200 for ten day prescription). Have been tested and have cdiff. NO symtoms. Gastro doctor tells he will not prescribe any treatment unless I show signs of active cdiff. He is concerned about giving me antibotics as he states your sytem can build up a resistance to them. I feel fine………….however, am concerned about being a cdiff carrier and having active cdiff again. I was so sick with this I don’t remember anything for the first 3 weeks in the hospital. My bottom was so RAW if took weeks and constant care before I became pain free. I take probotics. I am still concerned and don’t know if I should consult another doctor.

    Reply
    1. Infection Watch

      Dificid is thought to be more effective at killing c diff in the intestine. So you are less likely to have another episode. He is also right about the antibiotics. They may spark another episode if taken beyond the time needed to stop the diarrhea.

      The choice is yours but the doctor seems to be on firm ground

      Dave
      cdifficile.org

      Reply
  24. Jessica

    When I was around 7 months pregnant I ended up getting c diff and was treated. It went away and I didn’t have any problems for about six months. when all of the sudden I felt like I had c diff again. After a day of having all the same symptoms of c diff it went away and I was fine. I have this problem every couple of months or so. This all started around 2 years ago. It is extremely painful and prevents me from doing anything for a full day and night. So I was wondering if it is possible that I am still suffering from c diff

    Reply
    1. Infection Watch

      Hard to say without a test of your stool at the time of illness. Given the short duration maybe not.

      Dave
      cdifficile.org

      Reply
  25. Ashley

    I am a 24 yr old female. I had strep 6 times in a row and was treated with different antibiotics each time. A few days ago I noticed mucus in my stool. It was not lose at all just a regular BM. I went to the doctor and they took a stool sample. Came back with c diff. gave me 500 mg flagyl 3 times a day for 14 days. I have not cramping and no lose stool. I feel fine. Could this been a false positive and is there such thing as minor c diff?? In really nervous thinking that I’m going to get toxic mega colon or something serious and not even know. I didn’t even know I had c diff!!

    Reply
    1. Infection Watch

      A paper has come out in the last few days which notes that sensitive tests may be showing up very mild c diff which will resolve without treatment.

      You are a prime candidate for c diff however given the amount of antibiotics that you have had to take.

      You are likely to be low risk for a major c diff infection given you otherwise healthy state

      Remain watchful and finish the treatment but do not be too alarmed

      Dave
      cdifficile.org

      Reply
      1. Mal Nagle

        I am an 81year old healthy woman I had a “Citrobacter Koseri” urinary infection, on Augmentin for 10 days.
        4 weeks later urine still showed “Citrobacter Koseri” 10 more days of Augmentin.
        Had severe diarrhea for 3 days- 1st stool specimen showed cdiff. Started Flagyl
        2nd day Stool specimen was negative for cdiff only on had 4 doses on medication.
        Still on Flagyl course of 10 days.
        Questioned doctor about 2nd specimen being negative and was told I still have the infection even though it was negative is this possible?

        Reply
        1. Infection Watch

          c difficile test false negative

          If you google the above phrase you will find several leads as to why the test may have been negative but you could still be infected.

          Hope that helps

          Dave
          cdifficile.org

          Reply
        2. Linda

          Hi Mal,

          You sound like an inspiration to be healthy at your age of 81.
          Until unfortunately you came down with a “Citrobacter Koseri Urinary infection and had to be on medication so long.
          Then find out you had diarrhea for tree days and test positive for c,diff. I know this must have taken a Toole on you. I just was diagnose with c.diff myself, I’m 57. I know it can drain you down. Drink some Gatorade and plenty of water not to dehydrate. I’m just learning about c.diff, never heard of it until I wound up in emergency room, wrong diagnose, I flowed it up with my regular Dr. He then sent me to a Gastrologers Dr. August 27,13. Stool sample confirm c.diff. I did not know what it was, concern I start researching it. I’m on medication for now until they can do scope test. I did not have diarrhea, I had severe pains passing Blood for three long days.
          I find I have learned a lot from Dave, and others on this site that all have c.diff.

          I pray you are doing better, and stay strong and healthy.
          Best wishes
          ,Linda

          Reply
        3. Linda

          Mal,

          Sounds like you are staying on top of your health. I too have no other health problem. Blood pressure is good, cholesterol
          is good. Just stress, but who don’t have stress in their life.
          I hope you have family near to help you. But sounds like you
          are remarkable.

          Linda

          Reply
  26. Carrie

    This is my third time with dificid for C-diff. I am also taking the VSL#3 probiotics. I have had a 3 week course of dificid. I am very scared to quit as the next step is a fecal transplant. Are there patients that just maintain on dificid? What symptoms should I look for that would come back first? Are there now donor capsules that one can take for the C-diff instead of a FT? Where is the US on the vaccine for C-diff?

    Reply
    1. Infection Watch

      Dificid has a strong reputation for halting repeat attacks. We are not aware that prolonged courses of any C Diff drug are reccomended. The donor capsule idea is being explored at this time as is the vaccine. Neither have been through the full tesing process

      Dave
      cdifficile.org

      Reply
  27. Marianne T.

    My mother-in-law has been hospitalized after a bout of c-diff. They were going to release her (she is 91 yrs. old) but did another test and she still has the c-diff. I am currently on chemo. She lives with us. Should she be in a nursing facility while she is still be treated. I really don’t think she should come home as I my immune system is
    not the best. My side effects from the chemo is IBS for a few days after my treatment.

    Reply
    1. Infection Watch

      You are at risk because of your own need to take medicine which may disturb your intestine. If after care for her is not possible then hand hygiene for your family will be key. Regular washing especially after helping or ading her will ber vital. Was your hands for at least 30 seconds under running water

      dave
      cdifficile.org

      Reply
  28. unlucky

    Hi i just had my large bowel removed after getting sick with cdiff. i was on antibiotics and by the time i got to the hospital i had blood poisoning/sepsis and my stomach was swollen although i seemed okay i do not remember anything now. I had flu symptoms for a week then called a ambulance.They got family to sign a paper to remove my large bowel. i woke up two and half weeks later from coma and found i had a ileostomy. I guess i had internal bleeding so they did two surgerys back to back. I had edema and my organs were shutting down. Breathing and kidney troubles and mega colon along with pseudomembranous colitis. I almost died..I now have about eight inches of my large bowel left and they plan on doing a reversal. My question is ..its been about eight weeks since the operation and cdiff and now i have had several troubling episodes with stuff coming from my rectum. Supposedly my large bowel is no longer attached to anything. Yet the first episode looked like packing..white and hard two inches thick and long the second episode looked like a piece of my bowel…or a piece of beef…now i have a pudding substance that looks like carmel pudding coming out. Could this be cdiff back again? I talked to the doctor and he doesnt think it is likely but he also didnt think i had it the first time and told me it was the flu so i didnt seek help until i was deathly sick. I do not want to lose my bowel that i have left or i wont be able to do a reversal. I have also had chills and hot spells but could be menopause symptoms. Pain issues and stomach aches in morning and after eating. I heard relapse of cdiff is rare..but i am very concerned ..any ideas on what could be going on ? thanks..

    Reply
  29. Jane Perry

    I developed Cdiff as a result of taking Augmentin. Treated for 10 days with Metronidazole. 3 days after completing the regimen I relapsed. My doctor uncertain on how to proceed sent me to the ER. They gave me IV fluids including a gram of Vancomycin. Sent me home with a 4 week script for Metronidazole. After 2 days on regimen I am feeling much better.

    Since my doctor is unclear on course of treatment I have questions that she cannot answer. Here is my main question. After I complete the 4 weeks of Metronidazole would a stool sample reveal the presence of Cdiff or not?

    I am a 60 year old female previously in excellent health, normal weight, no smoking, physically fit, taking no medications. I took the antibiotic Augmentin as a result of a dog bite.

    Thank you for any insight into this nasty condition.

    Reply
    1. admin Post author

      The only way that they will know that the c diff has been dealt with is via a stool sample. It may not have been totally flushed from your body but may have come back under the control of the other bacteria that usually keep it in check

      Dave
      cdifficile.org

      Reply
    2. Jane Perry

      Update on my treatment. I did have that stool test and it showed negative but I relapsed 2 weeks after regimen. Went on that expensive vancomyacin ($1680 for two week supply). Got better and then relapsed again after approx. 2 weeks.

      Doctor then put me on a tapering down vancomyacin for 6 weeks. The only good news here is that I found a liquid vancomyacin from a compounding pharmacy that cost far far less. This worked for about six months

      Last Thanksgiving time I had the symptoms but the test showed negative. GI doc gave me Cholestyramine to help get me firmed up. It worked and I stopped taking that after about 3 weeks.

      I think I am pretty much ok, but I am not the same. Must be very careful to not get out of whack. I really watch what I eat.

      Also taking probiotic BioKPlus everyday.

      Reply
      1. Linda

        Hi Jane,
        Thank you for any information on your treatments. Glad to hear your doing ok so far. Do you have to be on a special diet on what you eat ? I have so many Questions to ask my G.I. Dr. I was shock to get results back the same day from the stool test. Hurried to the drug store to start Medication they called in. Of course it being on a long Labor day weekend, I have to wait to see the Dr. again. The cost of medication you had to take for this is High, wow. I wonder why your results came back negative. Hope you stay well, and I recover from this too.
        Thanks Jane,
        Linda

        Reply
        1. Jane Perry

          The reason that the test came back negative is that the Cdiff goes dormant. The only time that it tests positive is when it is active. I had the test right after taking the medication so it was hiding. My doctor should have know that you don’t do a test unless there are symptoms. She sent me to a GI that got me thru.

          Try the BioKPlus — http://www.biokplus.com/en-us/about-probiotics It does really help get you back on track.

          Reply
  30. Debbie Trainer

    I am on my second round of c-diff, acttually, I don’t even know if it went away the first time.My question is this…..I had my stomach removed in 2009 at the Cleveland Clinic due to perferations in my stomach(reaccuring ulcer disease), anyway my health is not all that great. I have trouble with my hemaglobin, i’m forever receiving blood, I had heart and lung failure last year, along with pnemonia, sepsis, blood loss(I came very close to dying) but this second round of c-diff is really bringing my health down. even though I have lomotil and immodiam ad I go 20-25 times, my stomach internal organs feel like they are being twisted, can’t sleep, I keep falling out( I will be on the toilet and wake up 2 hours later. I don’t know what to do , I’m scared. Could you possibly die from it? And when should I say- enough is enough and go to the hospital. HELP…..PLEASE!

    Reply
    1. admin Post author

      I would urge you to go to the hospital. We are medical journalists, not doctors so we can’t give advice. But neither of the drugs you have been given are c diff drugs. If you have a proven c diff infection via a c diff test then they should be giving you another drug.

      C Diff can make people very ill who are already unwell. Get help now

      Dave Roberts
      cdifficile.org

      Reply
  31. Liz

    Can a pregnant woman give c-diff to her newborn after she returns home? She is getting better and the baby is due in 10 days how safe is it for her and other children?

    Reply
    1. admin Post author

      She is more likely to infect others when she is still suffering. After it has stopped then there is a residual chance of infection from hard to eradicate spores but good personal hygiene should deal with that. It should be noted that many people are c diff carriers but suffer no ill effect unless they are unwell and have to have antibiotics. It is not an infection that automatically makes you ill

      Dave Roberts
      Cdifficile.org

      Reply
  32. Dave Roberts

    This from the http://www.uptodate.com/contents/patient-information-antibiotic-associated-diarrhea-clostridium-difficile site may help

    Diet — There is no particular food or group of foods that is best for a person with diarrhea. However, adequate nutrition is important during an episode of acute diarrhea. For patients without an appetite, it is acceptable to consume only liquids for a short period of time. Boiled starches and cereals (eg, potatoes, noodles, rice, wheat, and oats) with salt are recommended for people with watery diarrhea; crackers, bananas, soup, and boiled vegetables may also be eaten.

    A temporary type of lactose intolerance is common following diarrheal illness; this may last for several weeks to months. Thus, temporary avoidance of lactose-containing foods (eg, ice cream, milk and milk products) may be helpful.

    Reply

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